Evidence map›Paper›PMID 24438097›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2015

Polio survivors' perceptions of the meaning of quality of life and strategies used to promote participation in everyday activities.

Anita Atwal, Georgia Spiliotopoulou, Caron Coleman, Kate Harding, Caroline Quirke, Nicole Smith, Zeina Osseiran, Nicola Plastow, Lesley Wilson

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Article
  2. Article
  3. Review
  4. Article
  5. Article
  6. Article
  7. Development of a patient-centred conceptual framework of health-related quality of life in neuromyelitis optica: a qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2017
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Anita AtwalDivision of Occupational Therapy, School of Health Sciences and Social Care, Brunel University, Uxbridge, UK.
Georgia SpiliotopoulouDivision of Occupational Therapy, School of Health Sciences and Social Care, Brunel University, Uxbridge, UK.
Caron ColemanDivision of Occupational Therapy, School of Health Sciences and Social Care, Brunel University, Uxbridge, UK.
Kate HardingDivision of Occupational Therapy, School of Health Sciences and Social Care, Brunel University, Uxbridge, UK.
Caroline QuirkeDivision of Occupational Therapy, School of Health Sciences and Social Care, Brunel University, Uxbridge, UK.
Nicole SmithDivision of Occupational Therapy, School of Health Sciences and Social Care, Brunel University, Uxbridge, UK.
Zeina OsseiranDivision of Occupational Therapy, School of Health Sciences and Social Care, Brunel University, Uxbridge, UK.
Nicola PlastowDivision of Occupational Therapy, School of Health Sciences and Social Care, Brunel University, Uxbridge, UK.
Lesley WilsonDivision of Occupational Therapy, School of Health Sciences and Social Care, Brunel University, Uxbridge, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionThe term 'post-polio syndrome' (PPS) is used to describe new and late manifestations of poliomyelitis that occur later in life. Research in this area has focused upon health status rather than its effect on quality of life.

aimTo gain an in-depth understanding of the meaning of quality of life for polio survivors and to determine the type of strategies that are used by people with PPS and the support that they consider as important to facilitate participation in everyday life activities that have an impact on their quality of life.

methodSix focus groups were conducted with 51 participants from two regions in England. Data were audio-taped and analysed using thematic analysis.

resultsOur research found that polio survivors used terms used to describe quality of life which could be associated with that of happiness. Our research has identified resolvable factors that influence quality of life namely inaccessible environments, attitudes of health-care professionals and societal attitudes. Polio survivors have tried alternative therapies, chiefly acupuncture and massage, and found them to be effective in enhancing their quality of life.

conclusionIt is suggested that health-care professionals should consider factors which influence happiness and implement a person-centred approach with the views of the polio survivor being listened to. The three factors that influenced quality of life could be resolved by health-care professionals and by society. With regard to strategies used, we suggest that polio survivors should have access to the treatments that they perceive as important, although further research is required to design optimal interventions for this client group.

Indexed as

Activities of Daily LivingQuality of LifeSelf ConceptAgedAged, 80 and overAttitude of Health PersonnelEnglandFamilyFemaleFocus GroupsHealth Services Needs and DemandHealth StatusHumansMaleMiddle AgedPostpoliomyelitis Syndromeinterventionsparticipationpolioquality of life

Identifiers

PMID24438097
PMCPMC5060821

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.