ArticleHealth expectations : an international journal of public participation in health care and health policy2015
Polio survivors' perceptions of the meaning of quality of life and strategies used to promote participation in everyday activities.
Article in Health expectations : an international journal of public participation in health care and health policy, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed.
- Neurobiological modulation with REAC technology: enhancing pain, depression, anxiety, stress, and quality of life in post-polio syndrome subjects.Scientific reports · 2024Article
- The value of a post-polio syndrome self-management programme.Journal of thoracic disease · 2020Article
- Selection of a quality of life instrument for polio survivors in Northwest Nigeria.Health and quality of life outcomes · 2020Review
- "The car is my extra legs" - Experiences of outdoor mobility amongst immigrants in Sweden with late effects of polio.PloS one · 2019Article
- Nursing students' relationships among meaning in life, well-being, and positive beliefs: A cross-sectional survey study.Medicine · 2018Article
- Growing older with post-polio syndrome: Social and quality-of-life implications.SAGE open medicine · 2018Article
- Development of a patient-centred conceptual framework of health-related quality of life in neuromyelitis optica: a qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2017Article
Corrections and comments
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Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionThe term 'post-polio syndrome' (PPS) is used to describe new and late manifestations of poliomyelitis that occur later in life. Research in this area has focused upon health status rather than its effect on quality of life.
aimTo gain an in-depth understanding of the meaning of quality of life for polio survivors and to determine the type of strategies that are used by people with PPS and the support that they consider as important to facilitate participation in everyday life activities that have an impact on their quality of life.
methodSix focus groups were conducted with 51 participants from two regions in England. Data were audio-taped and analysed using thematic analysis.
resultsOur research found that polio survivors used terms used to describe quality of life which could be associated with that of happiness. Our research has identified resolvable factors that influence quality of life namely inaccessible environments, attitudes of health-care professionals and societal attitudes. Polio survivors have tried alternative therapies, chiefly acupuncture and massage, and found them to be effective in enhancing their quality of life.
conclusionIt is suggested that health-care professionals should consider factors which influence happiness and implement a person-centred approach with the views of the polio survivor being listened to. The three factors that influenced quality of life could be resolved by health-care professionals and by society. With regard to strategies used, we suggest that polio survivors should have access to the treatments that they perceive as important, although further research is required to design optimal interventions for this client group.
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