ArticleBMJ quality & safety2014
Improving transition from paediatric to adult cystic fibrosis care: programme implementation and evaluation.
Article in BMJ quality & safety, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Interventions for promoting participation in shared decision-making for children and adolescents with cystic fibrosis.The Cochrane database of systematic reviews · 2019Pooled it
- TRAQ in clinical practice: A narrative review for health care transition readiness.Health care transitions · 2026Review
- Health self-management programs for adolescents and young adults with chronic medical condition transitioning from pediatric to adult care: a scoping review.European journal of pediatrics · 2025Article
- Somewhere to go: a position paper on addressing gaps in transition care for adults with childhood-onset rare diseases.Orphanet journal of rare diseases · 2025Article
- Dynamic assessment of a transition process for patients with diabetes.Health care transitions · 2025Article
- Implementing transition readiness screening by nurses in pediatric oncology long-term follow-up care during the COVID-19 pandemic: Barriers and facilitators.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2025Article
- Transition Care in Cystic Fibrosis.Indian journal of pediatrics · 2023Review
- Improving the use of transition readiness measures in research and clinical care.Pediatric research · 2023Review
- Developing a specialty transition clinic: Inaugural clinical and financial operations.Health care transitions · 2023Article
- Perspectives from the periphery of Paediatrics.Frontiers in psychology · 2022Article
- What happens at adolescent and young adult HIV clinics? A national survey of models of care, transition and disclosure practices in Kenya.Tropical medicine & international health : TM & IH · 2020Article
- Managing the transition from paediatric to adult care for HIV, Kenya.Bulletin of the World Health Organization · 2019Article
- Controlled evaluation of a transition clinic for Dutch young people with cystic fibrosis.Pediatric pulmonology · 2019Article
- Changes in Clinical Markers During A Short-Term Transfer Program of Adult Cystic Fibrosis Patients from Pediatric to Adult Care.The open respiratory medicine journal · 2019Article
- A quality improvement program for adolescents with cystic fibrosis: focus on psychosocial skills.Orphanet journal of rare diseases · 2018Article
- Assessment of transition readiness in adolescents and young adults with chronic health conditions.Pediatric rheumatology online journal · 2017Article
- Explanation and elaboration of the SQUIRE (Standards for Quality Improvement Reporting Excellence) Guidelines, V.2.0: examples of SQUIRE elements in the healthcare improvement literature.BMJ quality & safety · 2016Article
- Article
- Cystic fibrosis.Nature reviews. Disease primers · 2015Review
- Longevity of patients with cystic fibrosis in 2000 to 2010 and beyond: survival analysis of the Cystic Fibrosis Foundation patient registry.Annals of internal medicine · 2014Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
backgroundThe paradigm of cystic fibrosis (CF) care has changed as effective therapies extend the lives of patients well into adulthood. Preparing for and maintaining high quality CF care into the adult healthcare setting is critical for prolonged survival. Unfortunately, this transfer process from the paediatric to the adult CF centre is met with a variety of challenges. OBJECTIVE AND
methodsThe objective of this quality improvement (QI) project was to develop, implement and evaluate a theory-based programme for transition from paediatric to adult CF care. In a multi-phase process, the paediatric and adult programmes developed a transition curriculum, addressed care standards and standardised patient transfer protocols. We evaluated the impact of this process through staff surveys, review of field notes from QI meetings, tracking transfers and responses of patients to the Transition Readiness Assessment Questionnaire (TRAQ) at the start of the programme and 18 months after initiation.
resultsThe collaboration between the paediatric and adult teams continued through quarterly meetings over the past 4 years. This has provided a forum that sustained our transition programme, harmonised care across CF centres and addressed other needs of our CF centre. Discussion of transition with families in the paediatric centre increased twofold (35% to 73% p<0.001), and resulted in a trend towards improved patient TRAQ self-advocacy scores and decreased in-hospital transfer.
conclusionsWe successfully created a curriculum and process for transition from paediatric to adult CF care at our centres. This collaboration shapes the communication between our paediatric and adult CF care teams and enables ongoing feedback among patients, families and providers. The impact of our transition programme on long-term patient morbidity will require future evaluation.
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