ArticleJournal of intellectual disability research : JIDR2014
Setting global research priorities for developmental disabilities, including intellectual disabilities and autism.
Article in Journal of intellectual disability research : JIDR, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 35 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
35 citing papers in PubMed, 1 synthesis or guideline pooled it.
- International palliative care research priorities: A systematic review.BMC palliative care · 2020Pooled it
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- Identifying cognitive profiles in children with neurodevelopmental disorders using online cognitive testing.Clinical child psychology and psychiatry · 2024Article
- Autistic Adults' Priorities for Future Autism Employment Research: Perspectives from the United Kingdom.Autism in adulthood · 2024Article
- A scoping review of autism research conducted in Central Asia: Knowledge gaps and research priorities.Autism : the international journal of research and practice · 2024Article
- Budget Impact Analysis of Risperidone Use and Adverse Event Monitoring in Autism Spectrum Disorder in Brazil: Assessment of Theoretical Versus Real Data.PharmacoEconomics - open · 2023Article
- What are the research priorities for strengthening public health emergency preparedness and response in Africa?Health research policy and systems · 2023Article
- Global, regional and national burden of autism spectrum disorder from 1990 to 2019: results from the Global Burden of Disease Study 2019.Epidemiology and psychiatric sciences · 2022Article
- Internalization of stigma among parents of children with autism spectrum disorder in Nigeria: a mixed method study.BMC psychology · 2021Article
- Children with Autism Spectrum Disorders in Low-Resource Settings: Reported Experiences and Needs of Parents in Mongolia.Journal of autism and developmental disorders · 2021Article
- Children and adolescents with neurodevelopmental disorders show cognitive heterogeneity and require a person-centered approach.Scientific reports · 2021Article
- Effectiveness of a technology-assisted, family volunteers delivered, brief, multicomponent parents' skills training intervention for children with developmental disorders in rural Pakistan: a cluster randomized controlled trial.International journal of mental health systems · 2021Article
- Factors influencing access to early intervention for families of children with developmental disabilities: A narrative review.Journal of applied research in intellectual disabilities : JARID · 2021Review
- Psychometric properties of a brief self-reported health-related quality of life measure (HRQoL-IDD) for persons with intellectual and developmental disabilities.Journal of applied research in intellectual disabilities : JARID · 2021Article
- Validation of the Communication Profile-Adapted in Ethiopian children with neurodevelopmental disorders.Global mental health (Cambridge, England) · 2021Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
objectivesThe prevalence of intellectual disabilities (ID) has been estimated at 10.4/1000 worldwide with higher rates among children and adolescents in lower income countries. The objective of this paper is to address research priorities for development disabilities, notably ID and autism, at the global level and to propose the more rational use of scarce funds in addressing this under-investigated area.
methodsAn expert group was identified and invited to systematically list and score research questions. They applied the priority setting methodology of the Child Health and Nutrition Research Initiative (CHNRI) to generate research questions and to evaluate them using a set of five criteria: answerability, feasibility, applicability and impact, support within the context and equity.
findingsThe results of this process clearly indicated that the important priorities for future research related to the need for effective and efficient approaches to early intervention, empowerment of families supporting a person with developmental disability and to address preventable causes of poor health in people with ID and autism.
conclusionsFor the public health and other systems to become more effective in delivering appropriate support to persons with developmental disabilities, greater (and more targeted) investment in research is required to produce evidence of what works consistent with international human rights standards.
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