Evidence map›Paper›PMID 24371432›Full record

ArticleMinnesota journal of law, science & technology2012

The Informed Cohort Oversight Board: From Values to Architecture.

Ingrid A Holm, Patrick L Taylor

Abstract read
In one paragraph

Article in Minnesota journal of law, science & technology, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

  1. Trial
  2. Trial
  3. Review
  4. Article
  5. Article
  6. Preferences for the Return of Individual Results From Research on Pediatric Biobank Samples.Journal of empirical research on human research ethics : JERHRE · 2017
    Article
  7. A semiquantitative metric for evaluating clinical actionability of incidental or secondary findings from genome-scale sequencing.Genetics in medicine : official journal of the American College of Medical Genetics · 2016
    Article
  8. The First Amendment Right to Speak About the Human Genome.University of Pennsylvania journal of constitutional law · 2014
    Article
  9. A framework for analyzing the ethics of disclosing genetic research findings.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2014
    Article
  10. Self-guided management of exome and whole-genome sequencing results: changing the results return model.Genetics in medicine : official journal of the American College of Medical Genetics · 2013
    Article
  11. Review
  12. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Ingrid A HolmDr. Holm is a principal investigator for The Gene Partnership (TGP), described herein. She is also affiliated with the following: Division of Genetics and Program in Genomics, Children's Hospital Boston; Department of Pediatrics, Harvard Medical School; The Manton Center for Orphan Disease Research, Children's Hospital Boston.
Patrick L TaylorMr. Taylor is a co-investigator of TGP and chair of the Informed Cohort Oversight Board (ICOB) from the ICOB's inception through the period described in this paper. He is also affiliated with the following: Petrie-Flom Center for Health Law Policy, Biotechnology and Bioethics, Harvard Law School; Department of Pediatrics, Harvard Medical School; Children's Hospital Informatics Program, Children's Hospital Boston.

Funding

Managing Incidental Findings in Human Subjects ResearchR01HG003178 · NHGRI · UNIVERSITY OF MINNESOTA TWIN CITIES · PI WOLF, SUSAN M. · 2005 to 2010
$1.5M
Returning Individual Genetic Research Results to Parents and ChildrenRC1HG005491 · NHGRI · BOSTON CHILDREN'S HOSPITAL · PI HOLM, INGRID ADELE · 2009 to 2010
$993k
Returning research results in children: Parental Preferences and Expert OversightR01HG006615 · NHGRI · BOSTON CHILDREN'S HOSPITAL · PI HOLM, INGRID ADELE · 2011 to 2013
$361k
NHGRI NIH HHS R01 HG003178NHGRI NIH HHS R01 HG006615NHGRI NIH HHS RC1 HG005491
6 · The paper itself

Abstract

PubMed holds no abstract for this paper.

Identifiers

PMID24371432
PMCPMC3872117

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.