ArticleBMC nephrology2013
Effective peer-to-peer support for young people with end-stage renal disease: a mixed methods evaluation of Camp COOL.
Article in BMC nephrology, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 2 of them syntheses that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
17 citing papers in PubMed, 2 syntheses or guidelines pooled it, 48 citations in OpenAlex.
- Peer support interventions in patients with kidney failure: A systematic review.Journal of psychosomatic research · 2023Pooled it
- Pooled it
- Long-term Effectiveness of a Peer-Led Asthma Self-management Program on Asthma Outcomes in Adolescents Living in Urban Areas: A Randomized Clinical Trial.JAMA network open · 2021Trial
- Barriers and challenges to peer support in chronic kidney disease: a landscape review using thematic synthesis.BMJ open · 2026Article
- Phased Introduction of Haemodialysis in Patients with Kidney Failure: A Mixed-Methods Feasibility Study.Healthcare (Basel, Switzerland) · 2026Article
- Effect of Peer Mentorship on Hospitalizations among Patients Receiving Maintenance Hemodialysis: A Pragmatic Randomized Controlled Trial.Journal of the American Society of Nephrology : JASN · 2025Article
- Interventions to Address Health-Related Social Needs Among People with Kidney Failure: A Rapid Scoping Review.International journal of environmental research and public health · 2025Article
- The effects of serving as a peer supporter on adolescents and young adults with chronic conditions: A scoping review.Health care transitions · 2025Review
- Peer-support needs and experiences of young adults with chronic conditions: A mixed methods study.Health care transitions · 2025Article
- Are we informing our patients correctly? Evaluation of perioperative counselling for paediatric intestinal stoma formation: a national study.Pediatric surgery international · 2024Article
- Article
- Article
- Shifting responsibilities: A qualitative study of how young people assume responsibility from their parents for self-management of their chronic kidney disease.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Multidisciplinarity in Transition Pathways for Patients With Kidney Disease: The Current State of Play.Frontiers in pediatrics · 2021Review
- Psychosocial considerations and recommendations for care of pediatric patients on dialysis.Pediatric nephrology (Berlin, Germany) · 2020Review
- Moving on: transitioning young people with chronic kidney disease to adult care.Pediatric nephrology (Berlin, Germany) · 2018Review
- Young people's decisions about biologic therapies: who influences them and how?Rheumatology (Oxford, England) · 2015Article
Corrections and comments
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Authors and funding
3 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe Camp COOL programme aims to help young Dutch people with end-stage renal disease (ESRD) develop self-management skills. Fellow patients already treated in adult care (hereafter referred to as 'buddies') organise the day-to-day program, run the camp, counsel the attendees, and also participate in the activities. The attendees are young people who still have to transfer to adult care. This study aimed to explore the effects of this specific form of peer-to-peer support on the self-management of young people (16-25 years) with ESRD who participated in Camp COOL (CC) (hereafter referred to as 'participants').
methodsA mixed methods research design was employed. Semi-structured interviews (n = 19) with initiators/staff, participants, and healthcare professionals were conducted. These were combined with retrospective and pre-post surveys among participants (n = 62), and observations during two camp weeks.
resultsSelf-reported effects of participants were: increased self-confidence, more disease-related knowledge, feeling capable of being more responsible and open towards others, and daring to stand up for yourself. According to participants, being a buddy or having one positively affected them. Self-efficacy of attendees and independence of buddies increased, while attendees' sense of social inclusion decreased (measured as domains of health-related quality of life). The buddy role was a pro-active combination of being supervisor, advisor, and leader.
conclusionsCamp COOL allowed young people to support each other in adjusting to everyday life with ESRD. Participating in the camp positively influenced self-management in this group. Peer-to-peer support through buddies was much appreciated. Support from young adults was not only beneficial for adolescent attendees, but also for young adult buddies. Paediatric nephrologists are encouraged to refer patients to CC and to facilitate such initiatives. Together with nephrologists in adult care, they could take on a role in selecting buddies.
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Registered trials
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