Evidence map›Paper›PMID 24345081›Full record

Trial reportHealth communication2014

Understanding social support burden among family caregivers.

Elaine Wittenberg-Lyles, Karla Washington, George Demiris, Debra Parker Oliver, Sara Shaunfield

Abstract readRandomized Controlled Trial
In one paragraph

Trial report in Health communication, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
27citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

27 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Pooled it
  4. Trial
  5. The Social Convoy for Family Caregivers Over the Course of Hospice.Journal of pain and symptom management · 2016
    Trial
  6. Exploring the collective hospice caregiving experience.Journal of palliative medicine · 2014
    Trial
  7. Trial
  8. Framing Helper Therapy to Support User Engagement: Causal Evidence from a Public Deployment of a Mental Health Support Text Messaging Program.Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference · 2026
    Article
  9. Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Exploring Social Support Experiences of Caregivers of Persons Living With Dementia in Hospice Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025
    Article
  17. Article
  18. Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Elaine Wittenberg-Lylesa Division of Nursing Research and Education, City of Hope.
Karla Washington
George Demiris
Debra Parker Oliver
Sara Shaunfield

Funding

A Problem Solving Intervention for Hospice CaregiversR01NR012213 · NINR · UNIVERSITY OF WASHINGTON · PI DEMIRIS, GEORGE · 2011 to 2021
$4.2M
NINR NIH HHS R01 NR012213NINR NIH HHS R01NR012213
6 · The paper itself

Abstract

Despite the abundance of research on social support, both as a variable in larger studies and as a central focus of examination, there is little consensus about the relationship between social support and health outcomes. Current social support measures typically account only for frequency and size of network, and a paucity of research exists that has explained social support burden, defined as the burden associated with accessing and receiving support from others. We analyzed audio-recorded discussions by hospice family caregivers about their caregiving problems and potential solutions to examine social relationships within networks and identify the processes that influence social support seeking and receiving. Using qualitative thematic analysis, we found that caregivers providing hospice care experience social support burden resulting from perceived relational barriers between friends and family, the inclination to remain in control, recognition of the loss of the patient as a source of social support and guidance in decision making, family dynamics, and decreased availability of emotional support. Social support researchers should consider how the quality of communication and relationships within social networks impacts the provision and subsequent outcomes of social support in varying contexts. Findings from this study suggest that hospice social support resources should be tailored to the caregiver's support needs and include assessment on the type of support to be offered.

Indexed as

Family RelationsSocial SupportAdaptation, PsychologicalAgedAged, 80 and overCaregiversCognitionCognitive Behavioral TherapyFemaleHospice CareHumansMaleMiddle AgedNorthwestern United StatesSocial NetworkingTape Recording

Identifiers

PMID24345081
PMCPMC4029862

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.