ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2014
Shifting responses in quality of life: people living with dialysis.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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Who cites it
13 citing papers in PubMed.
- Trial
- Beyond observed changes: how differential item functioning and response shift alter health-related quality of life interpretation in preemptive versus non-preemptive kidney transplant patients.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Response shifting: a qualitative meta-synthesis on response shift.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Review
- Examining Quality-of-Life Priorities of Older Adults Receiving Hemodialysis: A Q-Methodology Study.Kidney medicine · 2026Article
- Kidney-therapy decision-making among older adults and caregivers: treatment beliefs, prognostic information, and health priorities.BMC nephrology · 2025Article
- Quality of life experience in physically frail people on renal dialysis: A qualitative meta-synthesis on the difficulties and resources for better health care.International journal of nursing sciences · 2025Review
- Uncovering the story within the story: a scoping review of response shift in qualitative research.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- The Importance of Biochemical Parameters, Immunonutritional Status, and Social Support for Quality of Life in Chronic Hemodialysis Patients.Medicina (Kaunas, Lithuania) · 2024Article
- Nurse-perceived facilitators and barriers to palliative care in patients with kidney disease: A European Delphi survey.Journal of renal care · 2022Article
- Patient-reported outcome measures ( PROMs): making sense of individual PROM scores and changes in PROM scores over time.Nephrology (Carlton, Vic.) · 2021Review
- Quality of life in older adults receiving hemodialysis: a qualitative study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Article
- Discussions during shared decision-making in older adults with advanced renal disease: a scoping review.BMJ open · 2019Article
- Advance Care Planning among People Living with Dialysis.Healthcare (Basel, Switzerland) · 2016Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposePeople assess their quality of life (QoL) using internal standards, values, and priorities. With health changes, QoL responses shift to reflect current realities. This qualitative study investigated the life experience and QoL assessments of people living with dialysis (PWDs).
methodsThirty-one interviews with 20 PWDs over the age of 70 (mean time on dialysis 34 months) and 11 family members investigated experience with disease and dialysis, related life challenges, medical decision-making, and future planning. Interviews were recorded, transcribed, and analyzed for themes and hypotheses using qualitative methods and description.
resultsWhen beginning dialysis, PWDs' reported that life on dialysis was worth living and recalibrated their QoL assessments incorporating this standard into their daily lives. Three themes emerged as the disease progressed and dialysis became more difficult: PWDs first reported thriving on dialysis and then surviving with the support of dialysis, and when QoL was reported as poor, PWDs were reconsidering whether dialysis was still worth the life it was providing. Each of these steps involved changes in health circumstances, and PWDs explained their QoL assessments at each step using differing values and priorities. These steps in reconceptualization and reprioritization demonstrated PWDs' Response Shift and eventually led to another (recalibrated) standard: Life with dialysis was no longer worth living.
conclusionsQuality-of-life assessment is an on-going process for older dialysis patients. Clinicians should be alert for changes in subjective QoL statements as dialysis and underlying diseases progress. Response Shift explains these changes in assessment.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.