ArticleThe American journal of hospice & palliative care2015
Discordance in HIV-positive patient and health care provider perspectives on death, dying, and end-of-life care.
Article in The American journal of hospice & palliative care, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
7 citing papers in PubMed.
- FAmily-CEntered (FACE) Advance Care Planning Among African-American and Non-African-American Adults Living With HIV in Washington, DC: A Randomized Controlled Trial to Increase Documentation and Health Equity.Journal of pain and symptom management · 2019Trial
- A randomized clinical trial of adolescents with HIV/AIDS: pediatric advance care planning.AIDS care · 2017Trial
- 'The Woman Gives': Exploring gender and relationship factors in HIV advance care planning among African American caregivers.Journal of clinical nursing · 2021Article
- Assessing the Content Validity of a New Patient-Reported Measure of Barriers to Antiretroviral Therapy Adherence for Electronic Administration in Routine HIV Care: Proposal for a Web-Based Delphi Study.JMIR research protocols · 2019Article
- Have You Talked about It: Advance Care Planning among African Americans Living with HIV in Baltimore.Journal of urban health : bulletin of the New York Academy of Medicine · 2017Article
- A Population-Based Study of Care at the End of Life Among People With HIV in Ontario From 2010 to 2013.Journal of acquired immune deficiency syndromes (1999) · 2017Article
- Advance Care Planning and HIV Infection in the Era of Antiretroviral Therapy: A Review.Topics in antiviral medicineReview
Corrections and comments
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Authors and funding
2 authors.
Funding
Abstract
The purpose of this study was to investigate how HIV-positive patients and infectious disease health care providers think about death, dying, and end-of-life care (EOLC) planning. We conducted separate in-depth qualitative interviews with 47 patients and 11 providers. Interview data were transcribed and analyzed using a secondary comparative method. Patients and providers demonstrated profound differences in their perspectives on patient empowerment and attributions of control related to disease progression, imminence of death, and EOLC decision making. Notably, patients described fears related to life-extending interventions that generally went unaddressed within the clinical context. We argue for the routinization of EOLC discussions and suggest novel research approaches to improve patient empowerment and medical engagement.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.