ArticlePatient education and counseling2014
Distinct communication patterns during genetic counseling for late-onset Alzheimer's risk assessment.
Article in Patient education and counseling, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Clinical implications of APOE genotyping for late-onset Alzheimer's disease (LOAD) risk estimation: a review of the literature.Journal of neural transmission (Vienna, Austria : 1996) · 2019Pooled it
- Adaptation of the working alliance inventory for the assessment of the therapeutic alliance in genetic counseling.Journal of genetic counseling · 2021Trial
- Disclosing genetic risk of Alzheimer's disease to cognitively impaired patients and visit companions: Findings from the REVEAL Study.Patient education and counseling · 2017Trial
- How to implement person-centred care and support for dementia in outpatient and home/community settings: Scoping review.BMC health services research · 2022Article
- Re-examining the Ethics of Genetic Counselling in the Genomic Era.Journal of bioethical inquiry · 2020Article
- What constitutes patient-centred care for women: a theoretical rapid review.International journal for equity in health · 2019Review
- Discourse Features Among Providers, Patients, and Companions and Their Effect on Outcomes of Dementia Diagnosis Disclosure.The journals of gerontology. Series B, Psychological sciences and social sciences · 2019Article
- Patient characteristics, experiences and perceived value of pharmacogenetic testing from a single testing laboratory.Pharmacogenomics · 2019Article
- Genetic Sample Provision Among National Alzheimer's Coordinating Center Participants.Journal of Alzheimer's disease : JAD · 2019Article
- Genetic counseling globally: Where are we now?American journal of medical genetics. Part C, Seminars in medical genetics · 2018Article
- A Key Role for the Genetic Counsellor in the Genomics Era.F1000Research · 2018Article
- Elaboration of the Reciprocal-Engagement Model of Genetic Counseling Practice: a Qualitative Investigation of Goals and Strategies.Journal of genetic counseling · 2017Article
- How do providers discuss the results of pediatric exome sequencing with families?Personalized medicine · 2017Article
- Commentary on "Conceptualizing genetic counseling as psychotherapy in the era of genomic medicine".Journal of genetic counseling · 2014Article
- Conceptualizing genetic counseling as psychotherapy in the era of genomic medicine.Journal of genetic counseling · 2014Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
objectiveTo identify and characterize patient-provider communication patterns during disclosure of Alzheimer's disease genetic susceptibility test results and to assess whether these patterns reflect differing models of genetic counseling.
methods262 genetic counseling session audio-recordings were coded using the Roter Interactional Analysis System. Cluster analysis was used to distinguish communication patterns. Bivariate analyses were used to identify characteristics associated with the patterns.
resultsThree patterns were identified: Biomedical-Provider-Teaching (40%), Biomedical-Patient-Driven (34.4%), and Psychosocial-Patient-Centered (26%). Psychosocial-Patient-Centered and Biomedical-Provider-Teaching sessions included more female participants while the Biomedical-Patient-Driven sessions included more male participants (p=0.04).
conclusionCommunication patterns observed reflected the teaching model primarily, with genetic counseling models less frequently used. The emphasis on biomedical communication may potentially be at the expense of more patient-centered approaches. PRACTICE IMPLICATIONS: To deliver more patient-centered care, providers may need to better balance the ratio of verbal exchange with their patients, as well as their educational and psychosocial discussions. The delineation of these patterns provides insights into the genetic counseling process that can be used to improve the delivery of genetic counseling care. These results can also be used in future research designed to study the association between patient-centered genetic counseling communication and improved patient outcomes.
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