ArticleCurrent oncology (Toronto, Ont.)2013
Meeting the health information needs of prostate cancer patients using personal health records.
Article in Current oncology (Toronto, Ont.), 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
27 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- Digital supportive care in prostate cancer: a systematic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Pooled it
- Patient-Centered Digital Health Records and Their Effects on Health Outcomes: Systematic Review.Journal of medical Internet research · 2022Pooled it
- Functions and Outcomes of Personal Health Records for Patients with Chronic Diseases: A Systematic Review.Perspectives in health information managemen · 2021Pooled it
- Barriers to patient, provider, and caregiver adoption and use of electronic personal health records in chronic care: a systematic review.BMC medical informatics and decision making · 2020Pooled it
- Features and Effects of Information Technology-Based Interventions to Improve Self-Management in Chronic Kidney Disease Patients: a Systematic Review of the Literature.Journal of medical systems · 2017Pooled it
- Advice From Adolescents With Cancer, Their Caregivers, and Clinicians on Utilizing and Improving Patient Portals in Adolescent Oncology Care.Pediatric blood & cancer · 2026Article
- Improving transparency and empowerment for cancer patients by accessing their full online personal medical records.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Empowering Capabilities of People With Chronic Conditions Supported by Digital Health Technologies: Scoping Review.Journal of medical Internet research · 2025Article
- A multi-site trial of an electronic health integrated physical activity promotion intervention in breast and endometrial cancers survivors: MyActivity study protocol.Contemporary clinical trials · 2023Article
- Acceptability and usability of a patient portal for men with prostate cancer in follow-up care.Frontiers in digital health · 2022Article
- Patterns and predictors of cancer-specific patient health portal usage among patients with cancer: results from the UWCCC Survivorship Program.Cancer medicine · 2021Article
- Patient Portals to Support Palliative and End-of-Life Care: Scoping Review.Journal of medical Internet research · 2021Article
- Patients' Perspectives About Factors Affecting Their Use of Electronic Personal Health Records in England: Qualitative Analysis.Journal of medical Internet research · 2021Article
- How the Use of a Patient-Accessible Health Record Contributes to Patient-Centered Care: Scoping Review.Journal of medical Internet research · 2021Article
- A Comparative Analysis of Online Medical Record Utilization and Perception by Cancer Survivorship.Medical care · 2020Article
- Patients' Adoption of Electronic Personal Health Records in England: Secondary Data Analysis.Journal of medical Internet research · 2020Article
- Factors Affecting Patients' Use of Electronic Personal Health Records in England: Cross-Sectional Study.Journal of medical Internet research · 2019Article
- Developing a patient portal for haematology patients requires involvement of all stakeholders and a customised design, tailored to the individual needs.BMC medical informatics and decision making · 2019Article
- If you build it, they may not come: modifiable barriers to patient portal use among pre- and post-kidney transplant patients.JAMIA open · 2018Article
- Patient portal adoption and use by hospitalized cancer patients: a retrospective study of its impact on adverse events, utilization, and patient satisfaction.BMC medical informatics and decision making · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThere is interest in the use of health information technology in the form of personal health record (phr) systems to support patient needs for health information, care, and decision-making, particularly for patients with distressing, chronic diseases such as prostate cancer (pca). We sought feedback from pca patients who used a phr.
methodsFor 6 months, 22 pca patients in various phases of care at the BC Cancer Agency (bcca) were given access to a secure Web-based phr called provider, which they could use to view their medical records and use a set of support tools. Feedback was obtained using an end-of-study survey on usability, satisfaction, and concerns with provider. Site activity was recorded to assess usage patterns.
resultsOf the 17 patients who completed the study, 29% encountered some minor difficulties using provider. No security breaches were known to have occurred. The two most commonly accessed medical records were laboratory test results and transcribed doctor's notes. Of survey respondents, 94% were satisfied with the access to their medical records, 65% said that provider helped to answer their questions, 77% felt that their privacy and confidentiality were preserved, 65% felt that using provider helped them to communicate better with their physicians, 83% found new and useful information that they would not have received by talking to their health care providers, and 88% said that they would continue to use provider.
conclusionsOur results support the notion that phrs can provide cancer patients with timely access to their medical records and health information, and can assist in communication with health care providers, in knowledge generation, and in patient empowerment.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.