ArticleJournal of pediatric hematology/oncology2014
What do parents want to know when considering autopsy for their child with cancer?
Article in Journal of pediatric hematology/oncology, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05120518 (Post Mortem Tissue Donation of Pediatric Tumor Tissues and Cells), which is not on this map. Cited by 9 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Post Mortem Tissue Donation of Pediatric Tumor Tissues and Cells
Who cites it
9 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Factors affecting uptake of postmortem examination in the prenatal, perinatal and paediatric setting.BJOG : an international journal of obstetrics and gynaecology · 2018Pooled it
- The under reporting of recruitment strategies in research with children with life-threatening illnesses: A systematic review.Palliative medicine · 2017Pooled it
- Advancing neonatal autopsy by strengthening physician belief and fostering effective family communication.Pediatric research · 2025Review
- Pediatric Postmortem Tissue Donation in the Confines of a Pandemic: A Model of Collaboration.Pediatric neurology · 2023Article
- Why parents agree or disagree for minimally invasive tissue sampling (MITS) to identify causes of death in under-five children and stillbirth in North India: a qualitative study.BMC pediatrics · 2021Article
- Regret and unfinished business in parents bereaved by cancer: A mixed methods study.Palliative medicine · 2020Article
- Increasing value of autopsies in patients with brain tumors in the molecular era.Journal of neuro-oncology · 2019Article
- Rapid autopsy of a patient with recurrent anaplastic ependymoma.Palliative & supportive care · 2018Article
- Parents' experiences of postmortem tumor donation for high-grade gliomas: benefits and suggested improvements.Neuro-oncology advancesArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
Research has suggested that autopsy in pediatrics is a valued way for parents to better understand and process their child's death, yet physicians often express hesitancy in discussing this topic with parents. To better assist clinicians with initiating discussion about this often sensitive topic, the current study examined bereaved parents' preferences about the timing and content of the autopsy discussion as well as reasons for considering autopsy. This study explored the views of 30 parents who lost a child to a variety of malignancies between 6 months and 6 years ago. Results showed that 36.7% of parents recalled having a discussion about autopsy, and the vast majority of those who did not recall a discussion (89.5%) would have considered an autopsy if it had been discussed. The majority of participants in this study indicated their preference to have the first conversation about autopsy when it becomes clear that cure is no longer possible. Findings suggest that educating parents about the clinical, emotional, and potential research benefits of autopsy and tissue procurement will ultimately help them make informed decisions and understand the importance of autopsy in medical progress. The future research and clinical implications of these findings are discussed.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.