ArticleWorld journal of surgery2014
A grounded explanation of why women present with advanced breast cancer.
Article in World journal of surgery, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 1 of them a synthesis that pooled it.
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Who cites it
27 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Health system barriers influencing timely breast cancer diagnosis and treatment among women in low and middle-income Asian countries: evidence from a mixed-methods systematic review.BMC health services research · 2022Pooled it
- Trial
- Application of patient journey mapping in patients with breast cancer: a scoping review.BMJ open · 2025Article
- JURNI (Journeying with Patients' Understanding and Responding to Needs Interactively): An In-Hospital Navigation Application for Timely Diagnosis and Treatment of Breast Cancer at the University Malaya Medical Centre.Health services insights · 2024Article
- Feasibility of monitoring Global Breast Cancer Initiative Framework key performance indicators in 21 Asian National Cancer Centers Alliance member countries.EClinicalMedicine · 2024Article
- Exploring the health information-seeking practices of breast cancer patients in a middle-income country with a diverse ethnic population: a cross-sectional investigation.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Barriers to help-seeking for Malaysian women with symptoms of breast cancer: a mixed-methods, two-step cluster analysis.BMC health services research · 2023Article
- Over-the-Counter Breast Cancer Classification Using Machine Learning and Patient Registration Records.Diagnostics (Basel, Switzerland) · 2022Article
- "Alas … my sickness becomes my family's burden": A nested qualitative study on the experience of advanced breast cancer patients across the disease trajectory in Indonesia.Breast (Edinburgh, Scotland) · 2022Article
- Breast Cancer Care Timeliness Framework: A Quality Framework for Cancer Control.JCO global oncology · 2022Article
- Article
- Breast Cancer Screening in Semi-Rural Malaysia: Utilisation and Barriers.International journal of environmental research and public health · 2021Article
- Exploring Unmet Needs from an Online Metastatic Breast Cancer Support Group: A Qualitative Study.Medicina (Kaunas, Lithuania) · 2021Article
- Development and evaluation of a sustainable video health education program for newly diagnosed breast cancer patients in Malaysia.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Non-communicable Disease Surveillance in Malaysia: An Overview of Existing Systems and Priorities Going Forward.Frontiers in public health · 2021Review
- Presentation of breast cancer, help seeking behaviour and experience of patients in their cancer journey in Singapore: a qualitative study.BMC cancer · 2020Article
- Recognizing and appraising symptoms of breast cancer as a reason for delayed presentation in Ghanaian women: A qualitative study.PloS one · 2019Article
- Assessing the Quality of Life of Patients with Breast Cancer Treated in a Tertiary Hospital in a Resource-Poor Country.World journal of surgery · 2019Article
- Feasibility of Patient Navigation to Improve Breast Cancer Care in Malaysia.Journal of global oncology · 2018Article
- Radiopathological characteristics and outcomes of phyllodes tumor of the breast in Malaysian women.Medicine · 2018Article
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3 authors.
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No grant is acknowledged in the PubMed record.
Abstract
backgroundAdvanced breast cancer presentation remains a large obstacle in lowering mortality rates in low- and middle-resource countries. This study aims to explore the reasons why women present with breast cancer at an advanced stage.
methodsPurposive sampling of 19 breast cancer patients presenting with advanced cancer that were diagnosed within 2 years at the University Malaya Medical Centre, Kuala Lumpur, Malaysia. In-depth interviews were conducted, and audio-recordings were transcribed. Sample size was determined by theoretic sufficiency, and the constructivist grounded theory method was used.
resultsThe reasons for delayed presentation can be displayed in two models. The total breast cancer delay (TBCD) model was derived from the journey of the patients. Four concepts emerged: (1) pluralistic health systems; (2) points of delay; (3) presence of patient or system delays, and (4) patient decision-making at each stage. Eight points of delay were found. At each point, evidence of a patient decision-making model emerged: the breast cancer delay explanatory (BCDE) model, which was the process of assessing severity and knowing and choosing options. The four main operational constructs were (1) knowledge on disease and disease outcomes, (2) knowledge of treatment and treatment outcomes, (3) psychological and physical resources and support; and (4) roles in decision-making.
conclusionsThe phenomenon is explained by the TBCD and BCDE models. Deconstructing why women present with advanced breast cancer and resist treatment provides clarity of the issues and opportunities for intervention.
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