ArticleBMJ open2013
'I call it the blame and shame disease': a qualitative study about perceptions of social stigma surrounding type 2 diabetes.
Article in BMJ open, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02828995 (Evaluating the Influence of Diabetes Stigma on Medication Adherence), which is not on this map. Cited by 153 papers, 6 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Evaluating the Influence of Diabetes Stigma on Medication Adherence
Who cites it
153 citing papers in PubMed, 6 syntheses or guidelines pooled it, 337 citations in OpenAlex.
- Depression comorbidity in children and adolescents with type 2 diabetes mellitus: a systematic review and meta-analysis.Frontiers in endocrinology · 2026Pooled it
- The effectiveness of psychological interventions on diabetes distress and glycemic level in adults with type 2 diabetes: a systematic review and meta-analysis.BMC psychiatry · 2024Pooled it
- Experience of stigma among persons with type 2 diabetes in Africa: a systematic review.International health · 2024Pooled it
- The relationship between stigma and psychological distress among people with diabetes: a meta-analysis.BMC psychology · 2023Pooled it
- Understanding the influence of ethnicity on adherence to antidiabetic medication: Meta-ethnography and systematic review.PloS one · 2023Pooled it
- Non-Communicable Diseases-Related Stigma: A Mixed-Methods Systematic Review.International journal of environmental research and public health · 2020Pooled it
- Glycemic Control With Layperson-Delivered Telephone Calls vs Usual Care for Patients With Diabetes: A Randomized Clinical Trial.JAMA network open · 2024Trial
- Engaging patients in population-based chronic disease management: A qualitative study of barriers and intervention opportunities.Patient education and counseling · 2022Trial
- Process evaluation of team-based care in people aged >65 years with type 2 diabetes mellitus.BMJ open · 2019Trial
- Translation, cultural adaptation, and psychometric evaluation of the arabic version of the type 1 diabetes stigma assessment scale (DSAS-1-Ar) among adults in Jazan, Saudi Arabia.Journal of diabetes and metabolic disorders · 2026Article
- Meaningful engagement of lived experience in diabetes research and health service improvement: A rapid review of barriers to and enablers for community involvement among adults with type 2 diabetes.Diabetic medicine : a journal of the British Diabetic Association · 2026Review
- Promoting Stigma-Free Language in Type 2 Diabetes Care Among Primary Care Clinicians: Randomized Controlled Pilot Trial.JMIR diabetes · 2026Article
- Independent Associations of Diabetes Stigma and Perceived Social Support with Depression and Anxiety Among Adults with Type 2 Diabetes.Healthcare (Basel, Switzerland) · 2026Article
- Dementia Diagnosis Underreporting and Care Engagement and Planning Among Older Adults.JAMA network open · 2026Article
- Type 1 diabetes stigma: A UK survey of adults living with type 1 diabetes.Diabetic medicine : a journal of the British Diabetic Association · 2026Observational
- Article
- Testimonial Injustice and Its Harms in Hemodialysis Patients in Japan: A Qualitative Study.Cureus · 2026Article
- Diabetes-related stigma in type 2 diabetes mellitus and its association with family support, self-management, and glycemic control in rural southern India: A cross-sectional study.Journal of family medicine and primary care · 2026Article
- Stigma associated with early-onset type 2 diabetes: A secondary qualitative analysis.British journal of health psychology · 2026Article
- A Virtual Living Lab Platform Codeveloped for Mental Health in Youth-Onset Type 2 Diabetes (BrightSpark Care Lab): Protocol for a Mixed Methods Study.JMIR research protocols · 2026Article
93 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesWhile health-related stigma has been the subject of considerable research in other conditions (obesity and HIV/AIDS), it has not received substantial attention in diabetes. The aim of the current study was to explore the social experiences of Australian adults living with type 2 diabetes mellitus (T2DM), with a particular focus on the perception and experience of diabetes-related stigma.
designA qualitative study using semistructured interviews, which were audio recorded, transcribed and subject to thematic analysis.
settingThis study was conducted in non-clinical settings in metropolitan and regional areas in the Australian state of Victoria. Participants were recruited primarily through the state consumer organisation representing people with diabetes.
participantsAll adults aged ≥18 years with T2DM living in Victoria were eligible to take part. Twenty-five adults with T2DM participated (12 women; median age 61 years; median diabetes duration 5 years).
resultsA total of 21 (84%) participants indicated that they believed T2DM was stigmatised, or reported evidence of stigmatisation. Specific themes about the experience of stigma were feeling blamed by others for causing their own condition, being subject to negative stereotyping, being discriminated against or having restricted opportunities in life. Other themes focused on sources of stigma, which included the media, healthcare professionals, friends, family and colleagues. Themes relating to the consequences of this stigma were also evident, including participants' unwillingness to disclose their condition to others and psychological distress. Participants believed that people with type 1 diabetes do not experience similar stigmatisation.
conclusionsOur study found evidence of people with T2DM experiencing and perceiving diabetes-related social stigma. Further research is needed to explore ways to measure and minimise diabetes-related stigma at the individual and societal levels, and also to explore perceptions and experiences of stigma in people with type 1 diabetes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.