ArticleWorld journal of pediatrics : WJP2013
Psychological, cognitive and maternal stress assessment in children with primary ciliary dyskinesia.
Article in World journal of pediatrics : WJP, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers, 1 of them a synthesis that pooled it.
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Who cites it
33 citing papers in PubMed, 1 synthesis or guideline pooled it, 48 citations in OpenAlex.
- The patient's experience of primary ciliary dyskinesia: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2017Pooled it
- Effects on Parental Stress of Early Home-Based CareToy Intervention in Low-Risk Preterm Infants.Neural plasticity · 2019Trial
- Cerebrospinal fluid-driven ependymal motile cilia defects are implicated in multiple sclerosis.Brain : a journal of neurology · 2026Article
- Validation of Polish-Language Questionnaires for Assessing the Quality of Life of Patients with Primary Ciliary Dyskinesia (PCD-QOL).Advances in respiratory medicine · 2024Article
- Parenting stress and health-related quality of life among parents of extremely preterm born early adolescents in England: a cross-sectional study.Archives of disease in childhood. Fetal and neonatal edition · 2024Article
- Psychopathological Risk Assessment in Children with Hyperphenylalaninemia.Children (Basel, Switzerland) · 2022Article
- The Impact on Parents of Diagnosing PCD in Young Children.Journal of clinical medicine · 2022Article
- Pediatric Chronic Migraine Severity and Maternal Stress.Pediatric reports · 2021Article
- Lower airway clinical outcome measures for use in primary ciliary dyskinesia research: a scoping review.ERJ open research · 2021Article
- Anxiety and depression in Dutch patients with primary ciliary dyskinesia and their caregivers: associations with health-related quality of life.ERJ open research · 2021Article
- 5-HT6R null mutatrion induces synaptic and cognitive defects.Aging cell · 2021Article
- Is Quarantine for COVID-19 Pandemic Associated with Psychological Burden in Primary Ciliary Dyskinesia?International journal of environmental research and public health · 2020Article
- Motile ciliopathies.Nature reviews. Disease primers · 2020Review
- Coping with paediatric illness: Child's play? Exploring the effectiveness of a play- and sports-based cognitive behavioural programme for children with chronic health conditions.Clinical child psychology and psychiatry · 2020Article
- Health related quality of life in adult primary Ciliary dyskinesia patients in Cyprus: development and validation of the Greek version of the QOL-PCD questionnaire.Health and quality of life outcomes · 2020Article
- Article
- Validation of pediatric health-related quality of life instruments for primary ciliary dyskinesia (QOL-PCD).Pediatric pulmonology · 2019Article
- Developmental and behavioral problems in preschool-aged primary ciliary dyskinesia patients.European journal of pediatrics · 2019Observational
- Translation of the quality-of-life measure for adults with primary ciliary dyskinesia and its application in patients in Brazil.Jornal brasileiro de pneumologia : publicacao oficial da Sociedade Brasileira de Pneumologia e Tisilogia · 2019Article
- Memory performances and personality traits in mothers of children with obstructive sleep apnea syndrome.Psychology research and behavior management · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPrimary ciliary dyskinesia (PCD) is a rare disorder due to structure and functional abnormalities of respiratory cilia. There are no reports on the behavioral and psychological aspects of children and adolescents with PCD. This study was undertaken to assess the cognitive and behavioural characteristics, and the parental stress of a population of school-aged children with PCD.
methodsTen PCD and 34 healthy school-aged children underwent Wechsler Intelligence Scale for Children-III edition, Child Behavior Check-List questionnaire (CBCL), Parenting Stress Index-Short Form tests in order to perform a behavioural and psychological evaluation.
resultsPCD children showed significant behavioral and social competent problems in CBCL scale than control children, in particular with regard to internalizing problems score (P<0.001). Parental distress, parent-child interaction and total stress in the mothers of PCD patients were higher than those in the controls' parents (P<0.001).
conclusionOur findings pinpoint the importance of specific psychological support in the clinical management of children with PCD.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.