ArticleNutrients2013
Health-related quality of life in children with celiac disease: a study based on the Critical Incident Technique.
Article in Nutrients, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04533776 (Peer-Interaction Group Support in Adolescents With Celiac Disease), which is not on this map. Cited by 13 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Peer-Interaction Group Support in Adolescents With Celiac Disease: A Randomized Controlled Trial
Who cites it
13 citing papers in PubMed, 31 citations in OpenAlex.
- Design of a dietary intervention to assess the impact of a gluten-free diet in a population with type 1 Diabetes and Celiac Disease.BMC gastroenterology · 2015Trial
- Article
- Examining core self-management skills among adolescents with celiac disease.Journal of health psychology · 2021Article
- The patient journey to diagnosis and treatment of congenital sucrase-isomaltase deficiency.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Observational
- Assessing Health-Related Quality of Life in Children with Coeliac Disease: The Italian Version of CDDUX.Nutrients · 2021Article
- Psychological Needs and Services in a Pediatric Multidisciplinary Celiac Disease Clinic.Journal of clinical psychology in medical settings · 2020Article
- Accidental Gluten Contamination in Traditional Lunch Meals from Food Services in Brasilia, Brazil.Nutrients · 2019Article
- Article
- Article
- Activities, Participation and Quality of Life Concepts in Children and Adolescents with Celiac Disease: A Scoping Review.Nutrients · 2017Article
- Content Validation and Semantic Evaluation of a Check-List Elaborated for the Prevention of Gluten Cross-Contamination in Food Services.Nutrients · 2017Article
- A qualitative study of perceptions of determinants of disease burden among young patients with type 1 diabetes and their parents in South India.Diabetes, metabolic syndrome and obesity : targets and therapy · 2016Article
- Internalizing the threat of risk--a qualitative study about adolescents' experience living with screening-detected celiac disease 5 years after diagnosis.Health and quality of life outcomes · 2014Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Celiac Disease (CD) is a chronic autoimmune disease triggered by dietary gluten. Gluten avoidance, which is the only available treatment for CD, could impact on quality of life of children with CD. We present the results of a qualitative study on the emotional impact of gluten free diet (GFD) on the everyday life of children affected with CD. We investigated 76 celiac patients aged 2-18 years (average age: 9.5 years). By using the Critical Incident Technique (CIT), we defined emotions related to difficulties and awkward situations experienced by the patients. Written answers to open-ended questions from either children (older than 8 years) and parents (children younger than 8 years) were analyzed qualitatively. We found 80 dilemmas experienced in three different arenas (food situations at school, meals at home, meals outside) and characterized lived experiences of children with CD in everyday life (specific emotions, difficulties in relationships and in management of daily life). Children with CD experience strong emotions related to the GFD, permeating several aspects of everyday life. These dilemmas may be missed by a conventional, questionnaire-based approach to the psycho-social consequences of CD treatment.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.