ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2014
Informational needs of patients with metastatic breast cancer: what questions do they ask, and are physicians answering them?
Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
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Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it, 38 citations in OpenAlex.
- Timing of prognostic discussions in people with advanced cancer: a systematic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Pooled it
- Which quality of life issues are important to patients with metastatic breast cancer: Phase 1 and 2 development of European Organisation for Research and Treatment of Cancer metastatic breast cancer module (EORTC QLQ-MBR).Breast (Edinburgh, Scotland) · 2026Article
- Prognostic disclosure in metastatic breast cancer: a scoping review.The oncologist · 2026Article
- The Information Needs of Breast Cancer Patients at All Stages of Their Journey: A Scoping Review.Patient preference and adherence · 2026Review
- Support and care needs among Mexican women with metastatic breast cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- The Johns Hopkins Hope at Hopkins Clinic: supporting the comprehensive needs of individuals with metastatic breast cancer.Breast cancer research and treatment · 2025Article
- "Ariadne's Thread": Psycho-educational Empowerment Intervention for Patients with Metastatic Breast Cancer.Journal of cancer education : the official journal of the American Association for Cancer Education · 2024Article
- Characterizing informational needs and information seeking behavior of patients with breast cancer.American journal of surgery · 2024Article
- Quality of Life and Treatment-Related Side Effects in Patients With HR+/HER2- Advanced Breast Cancer: Findings From a Multicountry Survey.The oncologist · 2023Article
- International development of a patient-centered core outcome set for assessing health-related quality of life in metastatic breast cancer patients.Breast cancer research and treatment · 2023Article
- Article
- Exploring Unmet Needs from an Online Metastatic Breast Cancer Support Group: A Qualitative Study.Medicina (Kaunas, Lithuania) · 2021Article
- Review
- Preferences for life expectancy discussions following diagnosis with a life-threatening illness: a discrete choice experiment.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Evaluation of two mobile health apps for patients with breast cancer using the Mobile Application Rating Scale.mHealth · 2021Article
- Communication Needs of Cancer Patients and/or Caregivers: A Critical Literature Review.Journal of oncology · 2020Review
- Clinical and molecular characteristics of secondary breast metastases from primary lung cancer: a study of 22 Chinese cases.International journal of clinical and experimental pathology · 2020Article
- Patients and caregivers' unmet information needs in the field of patient education: results from an Italian multicenter exploratory survey.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019Article
- Metastatic breast cancer incidence, site and survival in Australia, 2001-2016: a population-based health record linkage study protocol.BMJ open · 2019Article
- Article
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
In the setting of breast oncology consultations, we sought to understand communication patterns between patients with advanced breast cancer and their oncologists during visits with Decision Support Services. This is a descriptive study analyzing themes and their frequencies of premeditated question lists of patients with metastatic breast cancer. We identified topics physicians most commonly discussed among themes previously found, documenting questions patients with metastatic breast cancer prepare for physician consultations and oncologists' response. Inclusion criteria were as follows: diagnosis of metastatic breast cancer, completion of a question list before meeting with an oncologist, and receipt of a summary of the consultation. We identified 59 women with metastatic breast cancer who received both documents. We reviewed the question lists and consultation summaries of these patients. Of the 59 patients whose documents we reviewed, patients most often asked about prognosis (38), symptom management (31), clinical trials (43), and quality of life (38). Physicians answered questions about prognosis infrequently (37% of the time); other questions that were answered more than commonly are the following: symptom management (81%), clinical trials (79%), and quality of life (66%). Breast cancer patients have many questions regarding their disease, its treatment, and symptoms, which were facilitated in this setting by Decision Support Services. Question lists may be insufficient to bridge the divide between physicians and patient information needs in the setting of metastatic breast cancer, particularly regarding prognosis. Patients may need additional assistance defining question lists, and physicians may benefit from training in communication, particularly regarding discussions of prognosis and end of life.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.