ArticleThe patient2013
How illness affects family members: a qualitative interview survey.
Article in The patient, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 49 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
49 citing papers in PubMed, 1 synthesis or guideline pooled it, 113 citations in OpenAlex.
- Spillover Effects on Caregivers' and Family Members' Utility: A Systematic Review of the Literature.PharmacoEconomics · 2019Pooled it
- Experiences, outcomes and unmet needs of caregivers of children with Cerebral Palsy in Spain: Protocol for a mixed-methods study.PloS one · 2026Article
- Beyond the individual: Household activity of daily living limitations, urban-rural residence, and mental health.SSM. Mental health · 2025Article
- Evaluating the prevalence of somatization symptoms in the family of cancer patients.Scientific reports · 2025Article
- Navigating competing needs: a qualitative study on parenthood with a partner with Huntington's disease.Health psychology and behavioral medicine · 2025Article
- Modernizing Newborn Screening in the Genomic Era: Importance of Health-Related Quality of Life.PharmacoEconomics - open · 2024Article
- On spillovers in economic evaluations: definition, mapping review and research agenda.The European journal of health economics : HEPAC : health economics in prevention and care · 2024Review
- Valuing the Societal Impact of Medicines and Other Health Technologies: A User Guide to Current Best Practices.Forum for health economics & policy · 2024Article
- Do Informal Care Recipients Internalise Carer Burden? Examining the Impact of Informal Care Receipt on Health Behaviours.Applied health economics and health policy · 2024Article
- Dyadic and Individual Variation in 24-Hour Heart Rates of Cancer Patients and Their Caregivers.Bioengineering (Basel, Switzerland) · 2024Article
- Clinical determinants for State-Trait Anxiety Inventory of the parents of children with respiratory problems.Pediatric pulmonology · 2024Article
- Exploring the experiences of dancers who have achieved peak performance: on-stage, pre-stage, and post-stage.Frontiers in psychology · 2024Article
- Free Online Decision Tools to Support Parents Making Decisions About Their Children's Chronic Health Condition: An Environmental Scan.Academic pediatrics · 2023Review
- Depression and anxiety in peruvian military personnel during the pandemic context: a cross-sectional study.BMC public health · 2023Article
- Refugee Family Health Brokers' (FHBs') Experiences with Health Care Providers: A Thematic Analysis.International journal of environmental research and public health · 2023Article
- Families with Mentally Ill Parents and Their Partners: Overlaps in Psychiatric Symptoms and Symptom Coping.International journal of environmental research and public health · 2023Article
- Supporting Children and Families in Medical Settings: Insights from Child Life Specialists During the COVID-19 Pandemic.Journal of child and family studies · 2023Article
- The impact of an intensive care unit admission on the health status of relatives of intensive care survivors: A prospective cohort study in primary care.The European journal of general practice · 2022Article
- Patient activation and treatment decision-making in the context of cancer: examining the contribution of informal caregivers' involvement.Journal of cancer survivorship : research and practice · 2022Article
- Psychosocial Distress among Family Members of COVID-19 Patients Admitted to Hospital and Isolation Facilities in the Philippines: A Prospective Cohort Study.Journal of clinical medicine · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 2 institutions in 1 country.
Funding
Abstract
objectiveSpillover effects of illness on family members can be substantial. The objective of this study was to identify the domains of family members' health and well-being that are affected when a relative has a chronic health condition.
methodsSemi-structured telephone interviews were conducted in February 2012 with 49 individuals whose relatives had any of five chronic health conditions (arthritis, cancer, Alzheimer's disease/dementia, cerebral palsy, and depression), purposively sampled to include different relationships with the ill relative (parent, child, spouse). Subjects were queried on whether and how having an ill relative affected their health and well-being; they were also asked about their caregiving responsibilities and the relative's health. Interview data were analyzed using thematic analysis.
resultsFamily members in our sample reported experiencing psychological and non-health effects from having an ill relative, and secondarily somatic effects. Effects on emotional health were most commonly reported as psychological spillover; non-health effects frequently included changes in daily activities and provision of caregiving. Spouses of patients reported the broadest range of spillover domains affected and adolescents of ill parents the fewest. Family members reported experiencing effects that were perceived as both positive and negative.
conclusionsSpillover of illness onto family members encompasses a wide range of domains of health and well-being, extending beyond those included in many existing health-related quality of life measures. Outcomes measurement efforts should be expanded to adequately capture these health and well-being outcomes for analysis, to ensure that the benefits of interventions are accurately estimated and conclusions are valid.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.