ArticleJournal of pediatric hematology/oncology2014
Insurance status as a sociodemographic risk factor for functional outcomes and health-related quality of life among youth with sickle cell disease.
Article in Journal of pediatric hematology/oncology, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06387758 (Low Systemic/High Local Exercise Load in Pediatric Sickle Cell Disease), which is not on this map. Cited by 25 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Low Systemic/High Local Exercise Load in Pediatric Sickle Cell Disease
Who cites it
25 citing papers in PubMed, 2 syntheses or guidelines pooled it, 48 citations in OpenAlex.
- Body Mass Index at Pediatric Leukemia Diagnosis and the Risks of Relapse and Mortality: Findings from a Single Institution and Meta-analysis.Journal of obesity · 2018Pooled it
- SOCIOECONOMIC AND NUTRITIONAL CHARACTERISTICS OF CHILDREN AND ADOLESCENTS WITH SICKLE CELL ANEMIA: A SYSTEMATIC REVIEW.Revista paulista de pediatria : orgao oficial da Sociedade de Pediatria de Sao PauloPooled it
- Health-related quality of life after allogeneic hematopoietic stem cell transplantation for sickle cell disease.Biology of blood and marrow transplantation : journal of the American Society for Blood and Marrow Transplantation · 2015Trial
- Parent-reported quality of life at school age among children born extremely preterm is associated with non-medical determinants of health and developmental outcomes.Early human development · 2026Article
- Sickle cell disease 115 years later: improving health outcomes through policy, research, and collaboration, to achieve health equity.Frontiers in health services · 2026Article
- Criterion validity of the functional status and pain assessment scale versus pain and length of stay in hospitalized adults with SCD.Journal of sickle cell disease · 2026Article
- Bidirectional processes linking social determinants of health and pediatric sickle cell anemia management: A qualitative study.Pediatric blood & cancer · 2023Article
- An Analysis of East Asian American Inpatient Psychiatric Data from the Hawai'i Health Information Corporation Database.Hawai'i journal of health & social welfare · 2023Article
- TCD screening and spending among children with sickle cell anemia.The American journal of managed care · 2023Article
- Article
- Sickle cell disease and social determinants of health: A scoping review.Pediatric blood & cancer · 2023Article
- Motivators and Barriers to Physical Activity among Youth with Sickle Cell Disease: Brief Review.Children (Basel, Switzerland) · 2022Review
- Survival inequity in vulnerable populations with early-stage hepatocellular carcinoma: a United States safety-net collaborative analysis.HPB : the official journal of the International Hepato Pancreato Biliary Association · 2021Article
- Social aspects of chronic transfusions: addressing social determinants of health, health literacy, and quality of life.Hematology. American Society of Hematology. Education Program · 2020Article
- Changes in Pain and Psychosocial Functioning and Transition to Chronic Pain in Pediatric Sickle Cell Disease: A Cohort Follow-up Study.The Clinical journal of pain · 2020Article
- Comparison of US Federal and Foundation Funding of Research for Sickle Cell Disease and Cystic Fibrosis and Factors Associated With Research Productivity.JAMA network open · 2020Article
- Universal screening for social determinants of health in pediatric sickle cell disease: A quality-improvement initiative.Pediatric blood & cancer · 2020Article
- Social-environmental factors and cognitive and behavioral functioning in pediatric sickle cell disease.Child neuropsychology : a journal on normal and abnormal development in childhood and adolescence · 2020Article
- Hypertension and Health-Related Quality of Life (HRQoL): Evidence from the US Hispanic Population.Clinical drug investigation · 2019Article
- Characterization of opioid use in sickle cell disease.Pharmacoepidemiology and drug safety · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 1 institution in 1 country.
Funding
Abstract
Youth with sickle cell disease (SCD) are at risk for functional limitations and poor health-related quality of life (QoL). This study examined sociodemographic factors that may interact with medical complications to reduce functional ability and QoL among youth with SCD. Fifty-three patient/caregiver pairs (children 8 to 18 years; M=12.3 y) with SCD completed the Functional Disability Inventory and Pediatric Quality of Life Inventory questionnaires. Medical database reviews were conducted to collect health care utilization, disease complications, and sociodemographic information; insurance type (public vs. private insurance) and family zip code to access Census tract data reflecting neighborhood distress. Insurance type, but not neighborhood sociodemographic risk indicators, was significantly associated with disease-related complications and QoL. There were significant differences in both health care utilization and QoL by insurance type. Complications were higher in the group with public insurance. Insurance type seems to be more strongly related to disease outcomes and QoL than neighborhood sociodemographic distress. Closer attention to the contribution of insurance type to health outcomes may provide important insight to potential barriers for disease management. These issues are critically important for health care efficiency and equity for poor and underserved children with chronic health conditions.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.