ArticleAmerican journal of public health2013
Creating research capacity through a tribally based institutional review board.
Article in American journal of public health, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
28 citing papers in PubMed.
- Health technology design considerations specific to Indigenous Data Sovereignty and implementation science.Frontiers in health services · 2026Article
- A systematic review of responsible stewardship of research and health data from Indigenous communities.NPJ digital medicine · 2025Article
- The ethical challenges of diversifying genomic data: A qualitative evidence synthesis.Cambridge prisms. Precision medicine · 2024Review
- Capacity Development of Research Ethics Administrators: Scoping Review.Journal of empirical research on human research ethics : JERHRE · 2022Article
- Knowing Well, Being Well: well-being born of understanding: The Urgent Need for Coordinated and Comprehensive Efforts to Combat Misinformation.American journal of health promotion : AJHP · 2022Article
- Strategies for culturally safe research with Native American communities: an integrative review.Contemporary nurse · 2022Review
- The commercialization of biospecimens from Indigenous Peoples: A scoping review of benefit-sharing.Frontiers in medicine · 2022Article
- Adaptations of an RCT during COVID: Case Study in one Rural American Indian Community.Collaborations (Coral Gables, Fla.) · 2022Article
- Extending Research Protections to Tribal Communities.The American journal of bioethics : AJOB · 2021Article
- Increasing health equity through biospecimen research: Identification of factors that influence willingness of Native Americans to donate biospecimens.Preventive medicine reports · 2021Article
- Urban American Indian and Alaska Native Data Sovereignty: Ethical Issues.American Indian and Alaska native mental health research (Online) · 2021Article
- Fostering Ethical, Legal, and Social Implications Research in Tribal Communities: The Center for the Ethics of Indigenous Genomic Research.Journal of empirical research on human research ethics : JERHRE · 2020Article
- Building Capacity for Productive Indigenous Community-University Partnerships.Prevention science : the official journal of the Society for Prevention Research · 2020Article
- Power Sharing, Capacity Building, and Evolving Roles in ELSI: The Center for the Ethics of Indigenous Genomic Research.Collaborations (Coral Gables, Fla.) · 2020Article
- Deliberations About Genomic Research and Biobanks With Citizens of the Chickasaw Nation.Frontiers in genetics · 2020Article
- Beyond the Belmont Principles: A Community-Based Approach to Developing an Indigenous Ethics Model and Curriculum for Training Health Researchers Working with American Indian and Alaska Native Communities.American journal of community psychology · 2019Article
- Community-Based Participatory Intervention Research with American Indian Communities: What is the State of the Science?Current developments in nutrition · 2019Article
- Community Protections in American Indian and Alaska Native Participatory Research-A Scoping Review.Social sciences (Basel, Switzerland) · 2019Article
- Changing the Conversation about The Ethics of Genomics and Health Disparities Research with American Indian and Alaska Native Communities: A Report from the Field.Journal of health care for the poor and underserved · 2019Article
- Tribal IRBs: A Framework for Understanding Research Oversight in American Indian and Alaska Native Communities.American Indian and Alaska native mental health research (Online) · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Tribal groups work tirelessly to maintain sovereignty rights, preserving and upholding tribal authority and protection over their land, people, businesses, and health. Moreover, the conduct of health science research by outsiders has had its share of an unethical, misguided, and abusive past. Tribally based institutional review boards (IRBs) are addressing these issues in an effort to control new health science research, set their own research agenda, and protect their people in the same spirit as has been accomplished through the perpetuation of sovereignty rights. We describe the success of a tribally based IRB at creating new capacity for health research and enhanced levels of trust, including bidirectional cultural education between academic researchers and tribal IRB committee members.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.