ArticleAmerican journal of public health2013
Research ethics and indigenous communities.
Article in American journal of public health, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
40 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Pooled it
- Potential research ethics violations against an indigenous tribe in Ecuador: a mixed methods approach.BMC medical ethics · 2020Pooled it
- A scoping review of Indigenous community-based research practices, guidelines, and ethical standards.Canadian journal of public health = Revue canadienne de sante publique · 2026Article
- Telling our history: a narrative study with Indigenous elders, wisdom for the coming generation.Frontiers in public health · 2026Article
- Reflecting on power: the inadequacies of small sample size technique through the lens of Indigenous health.American journal of epidemiology · 2025Article
- Why Revise When We Should Reconcile?The American journal of bioethics : AJOB · 2025Article
- The ethical challenges of diversifying genomic data: A qualitative evidence synthesis.Cambridge prisms. Precision medicine · 2024Review
- Understanding the trends of tribal research in India through bibliometric analysis.Journal of family medicine and primary care · 2022Review
- Strategies for culturally safe research with Native American communities: an integrative review.Contemporary nurse · 2022Review
- Adaptations of an RCT during COVID: Case Study in one Rural American Indian Community.Collaborations (Coral Gables, Fla.) · 2022Article
- Extending Research Protections to Tribal Communities.The American journal of bioethics : AJOB · 2021Article
- Best Practices for Conducting Clinical Trials With Indigenous Children in the United States.American journal of public health · 2021Article
- Perspective Developing Successful Collaborative Research Partnerships with AI/AN Communities.International journal of environmental research and public health · 2021Article
- Community engagement approaches for Indigenous health research: recommendations based on an integrative review.BMJ open · 2020Review
- Fostering Ethical, Legal, and Social Implications Research in Tribal Communities: The Center for the Ethics of Indigenous Genomic Research.Journal of empirical research on human research ethics : JERHRE · 2020Article
- Use and uptake of web-based therapeutic interventions amongst Indigenous populations in Australia, New Zealand, the United States of America and Canada: a scoping review.Systematic reviews · 2020Article
- Power Sharing, Capacity Building, and Evolving Roles in ELSI: The Center for the Ethics of Indigenous Genomic Research.Collaborations (Coral Gables, Fla.) · 2020Article
- Building Capacity for Productive Indigenous Community-University Partnerships.Prevention science : the official journal of the Society for Prevention Research · 2020Article
- Deliberations About Genomic Research and Biobanks With Citizens of the Chickasaw Nation.Frontiers in genetics · 2020Article
- A Case Study Describing a Community-Engaged Approach for Evaluating Polycyclic Aromatic Hydrocarbon Exposure in a Native American Community.International journal of environmental research and public health · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Institutional review boards (IRBs) function to regulate research for the protection of human participants. We share lessons learned from the development of an intertribal IRB in the Rocky Mountain/Great Plains Tribal region of the United States. We describe the process through which a consortium of Tribes collaboratively developed an intertribal board to promote community-level protection and participation in the research process. In addition, we examine the challenges of research regulation from a Tribal perspective and explore the future of Tribally regulated research that honors indigenous knowledge and promotes community accountability and transparency. We offer recommendations for researchers, funding agencies, and Tribal communities to consider in the review and regulation of research.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.