ArticleHealth expectations : an international journal of public participation in health care and health policy2015
Joint replacement recipients' views about health information privacy.
Article in Health expectations : an international journal of public participation in health care and health policy, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
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1 citing paper in PubMed.
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5 authors.
Funding
Abstract
backgroundResearchers are concerned about the possibility of restricted access to data as a result of specific consent requirements in privacy legislation, potentially resulting in smaller samples and a lack of representativeness which could bias results. In addition, there is uncertainty about what influences individuals to give consent for the use of their personal health information.
objectiveTo measure joint replacement recipients' health information privacy views and to assess potential predictors of these views.
designCross-sectional survey. SETTING AND
participantsPotential joint replacement recipients from two teaching hospitals in London, Ontario, Canada. MAIN VARIABLES: Age, gender, education, employment status, anticipated joint replacement, and expectations for surgery.
main outcome measuresPrivacy concerns as measured by the Concern Scale.
resultsThe response rate was 182/253 or 72%. The mean Concern score was 143.9/235.0 for the total sample (range = 82-216). Women had higher levels of privacy concerns than men on slightly over half of the individual questionnaire items. In women, surgical joint, age and employment explained 15% of the variance in concerns about personal health information privacy (P = 0.001). The model explained 6% of the variance in concerns in men (P = 0.138) and was not statistically significant. DISCUSSION AND
conclusionThis study indicates that demographic characteristics and health-care experiences play a role in the variability of health information privacy concerns. A greater understanding of patients' privacy views about health information could lead to a greater harmonization among privacy rules, research and data access, and the preferences of health-care consumers.
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