ArticleJournal of palliative medicine2013
A profile of children with complex chronic conditions at end of life among Medicaid beneficiaries: implications for health care reform.
Article in Journal of palliative medicine, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
36 citing papers in PubMed, 1 synthesis or guideline pooled it, 66 citations in OpenAlex.
- Economic costs of health and social care for a child with a life-limiting condition in their last year of life: a systematic review.BMJ paediatrics open · 2025Pooled it
- Complex Care Hospital Use and Postdischarge Coaching: A Randomized Controlled Trial.Pediatrics · 2018Trial
- Trial
- Beyond the Label: How Naming and Framing Impact Pediatric Palliative Care Acceptance.Journal of pain and symptom management · 2026Article
- Association and risk factors of pediatric pulmonary hypertension with obstructive sleep apnea: A national study utilizing the Kids' Inpatient Database (KID).International journal of pediatric otorhinolaryngology · 2023Article
- Pediatric Concurrent Hospice Care: Cost Implications of a Hybrid Payment Model.The American journal of hospice & palliative care · 2022Article
- Effectiveness of Pediatric Concurrent Hospice Care to Improve Continuity of Care.The American journal of hospice & palliative care · 2022Article
- End-of-life care quality for children with cancer who receive palliative care.Pediatric blood & cancer · 2022Article
- Home-Based Care for Children with Serious Illness: Ecological Framework and Research Implications.Children (Basel, Switzerland) · 2022Article
- Medical complexity and concurrent hospice care: A national study of Medicaid children from 2011 to 2013.Journal for specialists in pediatric nursing : JSPN · 2021Article
- Characterizing demographics, comorbidities, and costs of care among populations with Duchenne muscular dystrophy with Medicaid and commercial coverage.Journal of managed care & specialty pharmacy · 2021Article
- Developing a family-reported measure of experiences with home-based pediatric palliative and hospice care: a multi-method, multi-stakeholder approach.BMC palliative care · 2021Article
- Variation In State Medicaid Implementation Of The ACA: The Case Of Concurrent Care For Children.Health affairs (Project Hope) · 2020Article
- Who needs and continues to need paediatric palliative care? An evaluation of utility and feasibility of the Paediatric Palliative Screening scale (PaPaS).BMC palliative care · 2020Article
- Differences in Advance Care Planning and Circumstances of Death for Pediatric Patients Who Do and Do Not Receive Palliative Care Consults: A Single-Center Retrospective Review of All Pediatric Deaths from 2012 to 2016.Journal of palliative medicine · 2019Article
- Debunking Myths About Health Insurance Claims Data for Public Health Research and Practice.American journal of public health · 2019Article
- Pediatric Complex Chronic Conditions: Does the Classification System Work for Infants?The American journal of hospice & palliative care · 2019Article
- Comparing Resource Use in Medical Admissions of Children With Complex Chronic Conditions.Medical care · 2019Article
- Epidemiology of Children With Multiple Complex Chronic Conditions in a Mixed Urban-Rural US Community.Hospital pediatrics · 2019Article
- Patterns of Care at the End of Life for Children and Young Adults with Life-Threatening Complex Chronic Conditions.The Journal of pediatrics · 2018Article
Corrections and comments
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Authors and funding
2 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundAs the United States braces for full implementation of health care reform, the eyes of the nation are on Medicaid. The large number of newly eligible Medicaid beneficiaries may challenge health care resources and ultimately impact quality of care. This is a special concern among current Medicaid beneficiaries such as children with complex chronic conditions (CCCs) who have significant health care needs, especially at end of life (EOL). Yet, a comprehensive profile of these children is lacking.
objectiveTo understand the demographic and health characteristics, health care utilization, and expenditures among Medicaid children with CCCs at EOL.
methodsOur study used a retrospective cohort design with data from the 2007 and 2008 California Medicaid data files. Descriptive statistics were used to profile children in the last year of life.
resultsWe found a diverse group of children who suffered with serious, multiple chronic conditions, and who accessed comprehensive, multidisciplinary care. Most children had neuromuscular conditions (54%), cardiovascular conditions (46%), and cancer (30%). A majority (56%) had multiple CCCs. Children with CCCs received comprehensive care including hospital inpatient (67%), primary (82%), ancillary (87%), and other acute care services (83%); however, few children utilized hospice and home health care services (26%). Significant age differences existed among the children.
conclusionsThe current California Medicaid system appears to provide comprehensive care for children at EOL. The underutilization of hospice and home health services, however, represents an opportunity to improve the quality of EOL care while potentially reducing or remaining budget neutral.
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