ArticleJournal of the American Medical Informatics Association : JAMIA
Sharing behavioral data through a grid infrastructure using data standards.
Article in Journal of the American Medical Informatics Association : JAMIA. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed.
- Clinical MetaData ontology: a simple classification scheme for data elements of clinical data based on semantics.BMC medical informatics and decision making · 2019Article
- An ontology-aware integration of clinical models, terminologies and guidelines: an exploratory study of the Scale for the Assessment and Rating of Ataxia (SARA).BMC medical informatics and decision making · 2017Article
- Can data repositories help find effective treatments for complex diseases?Progress in neurobiology · 2017Review
- An exploratory study using an openEHR 2-level modeling approach to represent common data elements.Journal of the American Medical Informatics Association : JAMIA · 2016Article
- Establishment of Kawasaki disease database based on metadata standard.Database : the journal of biological databases and curation · 2016Article
- Case Study: Semantic Annotation of a Pediatric Critical Care Research Study.Computers, informatics, nursing : CIN · 2016Article
- A nursing information model process for interoperability.Journal of the American Medical Informatics Association : JAMIA · 2015Article
- From Big Data to Knowledge in the Social Sciences.The Annals of the American Academy of Political and Social Science · 2015Article
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Authors and funding
16 authors.
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Abstract
objectiveIn an effort to standardize behavioral measures and their data representation, the present study develops a methodology for incorporating measures found in the National Cancer Institute's (NCI) grid-enabled measures (GEM) portal, a repository for behavioral and social measures, into the cancer data standards registry and repository (caDSR).
methodsThe methodology consists of four parts for curating GEM measures into the caDSR: (1) develop unified modeling language (UML) models for behavioral measures; (2) create common data elements (CDE) for UML components; (3) bind CDE with concepts from the NCI thesaurus; and (4) register CDE in the caDSR.
resultsUML models have been developed for four GEM measures, which have been registered in the caDSR as CDE. New behavioral concepts related to these measures have been created and incorporated into the NCI thesaurus. Best practices for representing measures using UML models have been utilized in the practice (eg, caDSR). One dataset based on a GEM-curated measure is available for use by other systems and users connected to the grid.
conclusionsBehavioral and population science data can be standardized by using and extending current standards. A new branch of CDE for behavioral science was developed for the caDSR. It expands the caDSR domain coverage beyond the clinical and biological areas. In addition, missing terms and concepts specific to the behavioral measures addressed in this paper were added to the NCI thesaurus. A methodology was developed and refined for curation of behavioral and population science data.
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