ArticleJournal of the American Medical Informatics Association : JAMIA
Sociotechnical challenges to developing technologies for patient access to health information exchange data.
Article in Journal of the American Medical Informatics Association : JAMIA. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 4 of them syntheses that pooled it.
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Who cites it
18 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Development of the Joint Commission of Taiwan's Smart Healthcare Standard.Journal of medical systems · 2021Pooled it
- Computerised clinical decision support systems and absolute improvements in care: meta-analysis of controlled clinical trials.BMJ (Clinical research ed.) · 2020Pooled it
- Barriers and Facilitators to the Implementation of eHealth Services: Systematic Literature Analysis.Journal of medical Internet research · 2019Pooled it
- A Patient-Centered Framework for Evaluating Digital Maturity of Health Services: A Systematic Review.Journal of medical Internet research · 2016Pooled it
- Digital Health Technology Adoption Among Chinese Physicians: Latent Profile Analysis and Cross-Sectional Study.Journal of medical Internet research · 2025Article
- A study on user willingness to participate in an adverse drug event information sharing system.BMC public health · 2024Article
- Barriers and Facilitators to Accessing Digital Health Tools Faced by South Asian Canadians in Surrey, British Columbia: Community-Based Participatory Action Exploration Using Photovoice.Journal of medical Internet research · 2022Article
- "Engaging stakeholders in integrating social determinants of health into electronic health records: a scoping review".International journal of circumpolar health · 2021Article
- Guidance for publishing qualitative research in informatics.Journal of the American Medical Informatics Association : JAMIA · 2021Article
- Factors Influencing Development and Implementation of Patients' Access to Electronic Health Records-A Comparative Study of Sweden and the Netherlands.Frontiers in public health · 2021Article
- Patient Privacy Perspectives on Health Information Exchange in a Mental Health Context: Qualitative Study.JMIR mental health · 2019Article
- Falling short: how state laws can address health information exchange barriers and enablers.Journal of the American Medical Informatics Association : JAMIA · 2018Article
- Linking the health data system in the U.S.: Challenges to the benefits.International journal of nursing sciences · 2017Review
- Health information exchange policies of 11 diverse health systems and the associated impact on volume of exchange.Journal of the American Medical Informatics Association : JAMIA · 2017Article
- Patients, care partners, and shared access to the patient portal: online practices at an integrated health system.Journal of the American Medical Informatics Association : JAMIA · 2016Article
- Differing Strategies to Meet Information-Sharing Needs: Publicly Supported Community Health Information Exchanges Versus Health Systems' Enterprise Health Information Exchanges.The Milbank quarterly · 2016Article
- Impact of electronic personal health record use on engagement and intermediate health outcomes among cardiac patients: a quasi-experimental study.Journal of the American Medical Informatics Association : JAMIA · 2016Article
- The invisible work of personal health information management among people with multiple chronic conditions: qualitative interview study among patients and providers.Journal of medical Internet research · 2015Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundProviding patients with access to their medical data is widely expected to help educate and empower them to manage their own health. Health information exchange (HIE) infrastructures could potentially help patients access records across multiple healthcare providers. We studied three HIE organizations as they developed portals to give consumers access to HIE data previously exchanged only among healthcare organizations.
objectiveTo follow the development of new consumer portal technologies, and to identify barriers and facilitators to patient access to HIE data.
methodsSemistructured interviews of 15 key informants over a 2-year period spanning the development and early implementation of three new projects, coded according to a sociotechnical framework.
resultsAs the organizations tried to develop functionality that fully served the needs of both providers and patients, plans were altered by technical barriers (primarily related to data standardization) and cultural and legal issues surrounding data access. Organizational changes also played an important role in altering project plans. In all three cases, patient access to data was significantly scaled back from initial plans.
conclusionsThis prospective study revealed how sociotechnical factors previously identified as important in health information technology success and failure helped to shape the evolution of three novel consumer informatics projects. Barriers to providing patients with seamless access to their HIE data were multifactorial. Remedies will have to address technical, organizational, cultural, and other factors.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.