ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2014
Development of a measure of asthma-specific quality of life among adults.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
14 citing papers in PubMed.
- Performance of the Asthma Impact on Quality of Life Scale (A-IQOLS) in diverse asthma research populations and demographic subgroups.The Journal of allergy and clinical immunology · 2019Trial
- A new measure to assess asthma's effect on quality of life from the patient's perspective.The Journal of allergy and clinical immunology · 2018Trial
- Understanding data visualization techniques in qualitative studies used to develop and validate patient-reported outcome measures: a targeted literature review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Review
- School nurse asthma program reduces healthcare utilization in children with persistent asthma.The Journal of asthma : official journal of the Association for the Care of Asthma · 2018Article
- Development of Methods for the Mapping of Utilities Using Mixture Models: Mapping the AQLQ-S to the EQ-5D-5L and the HUI3 in Patients with Asthma.Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research · 2018Article
- Mapping Between the Sydney Asthma Quality of Life Questionnaire (AQLQ-S) and Five Multi-Attribute Utility Instruments (MAUIs).PharmacoEconomics · 2017Article
- A Qualitative Exploration of Less Acculturated Mexican Mothers' Safety Perceptions of Herbs, Medicines, and Cleaners in the Home.Journal of immigrant and minority health · 2016Article
- The living with asthma study: issues affecting the perceived health and well-being of Irish adults with asthma.Irish journal of medical science · 2016Article
- Understanding asthma-specific quality of life: moving beyond asthma symptoms and severity.The European respiratory journal · 2015Article
- A qualitative study of the impact of severe asthma and its treatment showing that treatment burden is neglected in existing asthma assessment scales.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2015Article
- Assessing the validity of the RAND negative impact of asthma on quality of life short forms.The Journal of allergy and clinical immunology · 2014Article
- Delivering telemedicine interventions in chronic respiratory disease.Breathe (Sheffield, England) · 2014Article
- Correspondence between the RAND-Negative Impact of Asthma on Quality of Life item bank and the Marks Asthma Quality of Life Questionnaire.Clinical therapeutics · 2014Article
- Developing an item bank and short forms that assess the impact of asthma on quality of life.Respiratory medicine · 2014Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
purposeA key goal in asthma treatment is improvement in quality of life (QoL), but existing measures often confound QoL with symptoms and functional impairment. The current study addresses these limitations and the need for valid patient-reported outcome measures by using state-of-the-art methods to develop an item bank assessing QoL in adults with asthma. This article describes the process for developing an initial item pool for field testing.
methodsFive focus group interviews were conducted with a total of 50 asthmatic adults. We used "pile sorting/binning" and "winnowing" methods to identify key QoL dimensions and develop a pool of items based on statements made in the focus group interviews. We then conducted a literature review and consulted with an expert panel to ensure that no key concepts were omitted. Finally, we conducted individual cognitive interviews to ensure that items were well understood and inform final item refinement.
resultsSix hundred and sixty-one QoL statements were identified from focus group interview transcripts and subsequently used to generate a pool of 112 items in 16 different content areas.
conclusionsItems covering a broad range of content were developed that can serve as a valid gauge of individuals' perceptions of the effects of asthma and its treatment on their lives. These items do not directly measure symptoms or functional impairment, yet they include a broader range of content than most existent measures of asthma-specific QoL.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.