ArticleMaternal and child health journal2014
Family perceptions of shared decision-making with health care providers: results of the National Survey of Children With Special Health Care Needs, 2009-2010.
Article in Maternal and child health journal, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
23 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Exploring motivations and resistances for implementing shared decision-making in clinical practice: A systematic review based on a structure-process-outcome model.Health expectations : an international journal of public participation in health care and health policy · 2022Pooled it
- Barriers and facilitators of pediatric shared decision-making: a systematic review.Implementation science : IS · 2019Pooled it
- The Association Between Shared Decision-Making and Child Health in the General Pediatric Population.Maternal and child health journal · 2026Article
- Pediatricians' role in healthcare for Latino autistic children: Shared decision-making versus "You've got to do everything on your own".Autism : the international journal of research and practice · 2023Article
- Ethical and practical considerations related to data sharing when collecting patient-reported outcomes in care-based child health research.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Shared decision-making for children with medical complexity in community health services: a scoping review.BMJ paediatrics open · 2023Article
- Disparities in Family-Centered Care Among US Children and Youth with Special Healthcare Needs.The Journal of pediatrics · 2023Article
- Provision of dental services for vulnerable groups: a scoping review on children with special health care needs.BMC health services research · 2021Article
- Exploring Health Literacy, Transition Readiness, and Healthcare Utilization in Medicaid Chronically Ill Youth.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2021Article
- The Effect of Medical Home on Shared Decision-Making for Caregivers of Children with Emotional, Developmental, or Behavioral Health Conditions.Maternal and child health journal · 2021Article
- Social-Ecological Barriers to Access to Healthcare for Adolescents: A Scoping Review.International journal of environmental research and public health · 2021Article
- Coping strategies adopted by Iranian families of children with Down syndrome: A qualitative study.Medicine · 2020Article
- Social Determinants of Health, the Family, and Children's Personal Hygiene: A Comparative Study.International journal of environmental research and public health · 2019Article
- Shared Decision Making About Starting Anti-TNFs: A Pediatric Perspective.Journal of pediatric gastroenterology and nutrition · 2019Article
- Health Care System Factors Associated with Transition Preparation in Youth with Special Health Care Needs.Population health management · 2019Article
- Clinical Care Coordination in Medically Complex Pediatric Cases: Results From the National Survey of Children With Special Health Care Needs.Global pediatric health · 2019Article
- Shared decision making and time to exacerbation in children with asthma.The Journal of asthma : official journal of the Association for the Care of Asthma · 2018Article
- Parent Communication Prompt to Increase Shared Decision-Making: A New Intervention Approach.Frontiers in pediatrics · 2018Article
- Shared Decision Making among Children with Medical Complexity: Results from a Population-Based Survey.The Journal of pediatrics · 2018Article
- Clarifying the Predictive Value of Family-Centered Care and Shared Decision Making for Pediatric Healthcare Outcomes Using the Medical Expenditure Panel Survey.Health services research · 2017Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The Maternal and Child Health Bureau recently revised its measure of family-provider shared decision-making (SDM) to better align with parents' views and the intent of SDM. We sought to assess achievements in meeting the revised measure; examine socio-demographic/health correlates; and determine the relationships between SDM and access to quality health care. We analyzed data for 40,242 children with special health care needs (CSHCN) from the 2009-2010 National Survey of CSHCN and assessed the prevalence of SDM and association with other US CSHCN socio-demographic/health characteristics using bivariate and multivariate methods. Logistic regression was used to determine associations between SDM and having a medical home and preventive medical/dental visits. Approximately 70% of families of CSHCN perceived themselves as shared decision-makers in their child's care. Families of CSHCN with greater functional limitations had twice the odds of lacking SDM than those never affected. Disparities in attainment rates were noted for families with low versus high income (61 vs. 77%), less versus more than high school education (59 vs. 73%), privately insured versus uninsured (76 vs. 57%), and minority versus white race (63 vs. 74%). CSHCN with medical homes had 6 times greater odds of perceived SDM and as much as one and a half times the odds of receiving preventive care than CSHCN without a medical home. Major differences in family SDM perceptions are associated with having a medical home, particularly when characterized by family-centered care. Populations of concern are those with more functionally limited children and increased socio-economic challenges.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.