ArticleBMC health services research2013
The caregiving perspective in heart failure: a population based study.
Article in BMC health services research, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Effectiveness and cost effectiveness of palliative care interventions in people with chronic heart failure and their caregivers: a systematic review.BMC palliative care · 2022Pooled it
- Heart Failure Caregiver Burden and Outcomes: A Systematic Review.Journal of primary care & community healthPooled it
- Caregivers' Contributions to Heart Failure Self-care: An Updated Systematic Review.The Journal of cardiovascular nursingPooled it
- The effect of a caring program based on the Pender's health promotion model on caregiver burden in family caregivers of patients with chronic heart failure: A quasi-experimental study.Journal of education and health promotion · 2024Article
- Strengths-building through life purpose, self-care goal setting and social support: Study protocol for Caregiver Support.Contemporary clinical trials communications · 2022Article
- Using Grounded Theory to Inform the Human-Centered Design of Digital Health in Geriatric Palliative Care.Journal of pain and symptom management · 2020Article
- Perceptions of Information and Communication Technology as Support for Family Members of Persons With Heart Failure: Qualitative Study.Journal of medical Internet research · 2019Article
- Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: a state-of-the-science review.Heart failure reviews · 2017Review
- Complex Care Options for Patients With Advanced Heart Failure Approaching End of Life.Current heart failure reports · 2016Review
- Observational
- Caregiver Contribution to Heart Failure Self-Care (CACHS).Nursing open · 2016Article
- Unplanned admissions and the organisational management of heart failure: a multicentre ethnographic, qualitative study.BMJ open · 2015Article
- Caregivers' perceptions of illness severity and end of life service utilization in advanced heart failure.Heart & lung : the journal of critical careArticle
- "We're all we got is each other": Mixed-methods analysis of patient-caregiver dyads' management of heart failure.Heart & lung : the journal of critical careArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundHeart failure (HF) is a frequent condition in the elderly and mortality is high. This study sought to describe the profile of those providing care in the community and their needs.
methodsThe South Australian Health Omnibus is an annual, random, face-to-face, cross sectional survey conducted within the state. Having standardized data to the whole population, the study describes the subset of the population who identify that they actively cared for someone at the end of life with HF in the five years before survey administration.
resultsThree hundred and seventy three respondents (2.0% of the whole population; 4.9% of caregivers) reported being a caregiver of someone with HF. There were 84 active caregivers (day-to-day or intermittent hands on caregivers) for people with HF. Mean age for caregivers for those with HF was much higher than other caregivers (55.7 vs 49.4; p < 0.001) with care lasting for an average of 48.9 months (SD 66.2). People caring for those with HF were far less likely to access specialist palliative care services (38.1% vs 60.9%; p < 0.0001) despite having much greater levels of unmet needs for physical care 28.3% vs 14.1%; p = 0.008).
conclusionStudy findings suggest that there is a significant burden placed on caregivers for people with HF over extended periods in the community. There are differences in access to services for these caregivers compared to those dying from other conditions, particularly cancer.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.