Evidence map›Paper›PMID 24003093›Full record

SynthesisCMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne2013

Health care experiences of people with dementia and their caregivers: a meta-ethnographic analysis of qualitative studies.

Jeanette C Prorok, Salinda Horgan, Dallas P Seitz

Abstract readSystematic Review
PubMed Full text at PMC Publisher
In one paragraph

Synthesis in CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 64 papers, 13 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
64citing papers in PubMed, 13 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

64 citing papers in PubMed, 13 syntheses or guidelines pooled it.

  1. Pooled it
  2. The Young Carers' Journey: A Systematic Review and Meta Ethnography.International journal of environmental research and public health · 2022
    Pooled it
  3. Mini-Cog for the detection of dementia within a secondary care setting.The Cochrane database of systematic reviews · 2021
    Pooled it
  4. Mini-Cog for the detection of dementia within a community setting.The Cochrane database of systematic reviews · 2021
    Pooled it
  5. Mini-Cog for the detection of dementia within a primary care setting.The Cochrane database of systematic reviews · 2021
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4 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

3 authors.

Jeanette C Prorok
Salinda Horgan
Dallas P Seitz

Funding

Canadian Institutes of Health Research 114493
6 · The paper itself

Abstract

backgroundUnderstanding the health care experience of people with dementia and their caregivers is becoming increasingly important given the growing number of affected individuals. We conducted a systematic review of qualitative studies that examined aspects of the health care experience of people with dementia and their caregivers to better understand ways to improve care for this population.

methodsWe searched the electronic databases MEDLINE, Embase, PsychINFO and CINAHL to identify relevant articles. We extracted key study characteristics and methods from the included studies. We also extracted direct quotes from the primary studies, along with the interpretations provided by authors of the studies. We used meta-ethnography to synthesize the extracted information into an overall framework. We evaluated the quality of the primary studies using the Consolidated Criteria for Reporting Qualitative Research (COREQ) checklist.

resultsIn total, 46 studies met our inclusion criteria; these involved 1866 people with dementia and their caregivers. We identified 5 major themes: seeking a diagnosis; accessing supports and services; addressing information needs; disease management; and communication and attitudes of health care providers. We conceptualized the health care experience as progressing through phases of seeking understanding and information, identifying the problem, role transitions following diagnosis and living with change.

interpretationThe health care experience of people with dementia and their caregivers is a complex and dynamic process, which could be improved for many people. Understanding these experiences provides insight into potential gaps in existing health services. Modifying existing services or implementing new models of care to address these gaps may lead to improved outcomes for people with dementia and their caregivers.

Indexed as

CaregiversDelivery of Health CareDementiaHealth Services AccessibilityHumansQualitative ResearchQuality of Health Care

Identifiers

PMID24003093
PMCPMC3787191

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.