ArticleNursing research
Parent and child perceptions of a self-regulated, home-based exercise program for children with cystic fibrosis.
Article in Nursing research. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 14 papers, 4 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Parents' experiences of family-based physical activity interventions: a systematic review and qualitative evidence synthesis.The international journal of behavioral nutrition and physical activity · 2025Pooled it
- Physical activity and exercise training in cystic fibrosis.The Cochrane database of systematic reviews · 2022Pooled it
- Pooled it
- Interventions for promoting participation in shared decision-making for children and adolescents with cystic fibrosis.The Cochrane database of systematic reviews · 2019Pooled it
- The views of children and young people on the use of silk garments for the treatment of eczema: a nested qualitative study within the CLOTHing for the relief of Eczema Symptoms (CLOTHES) randomized controlled trial.The British journal of dermatology · 2018Trial
- Article
- Mapping Perceived Impact, Facilitators and Barriers of Cystic Fibrosis Management in Children and Adolescents: A Qualitative Study From the Parents' Perspective.Scandinavian journal of caring sciences · 2025Article
- Parental and familial factors related to participation in a home-based physical activity intervention in children with obesity or Prader-Willi syndrome.Obesity pillars · 2023Article
- Digital technology for delivering and monitoring exercise programs for people with cystic fibrosis.The Cochrane database of systematic reviews · 2023Review
- Barriers and facilitators of physical activity in children with bronchiectasis: Perspectives from children and parents.Frontiers in pediatrics · 2022Article
- Development and validation of the Cystic Fibrosis Decisional Balance for Physical Activity scale (CF-DB-PA).BMC pulmonary medicine · 2021Article
- Factors influencing physical activity in adults with cystic fibrosis.BMC pulmonary medicine · 2021Article
- Exercise and Cystic Fibrosis.Advances in experimental medicine and biology · 2020Review
- "I just want to get better": experiences of children and youth with juvenile idiopathic arthritis in a home-based exercise intervention.Pediatric rheumatology online journal · 2018Article
Corrections and comments
- Erratum issuedDiVirgilio, Dana [corrected to Divirgilio, Dana]
Authors and funding
6 authors.
Funding
Abstract
backgroundDespite recognized benefits, many children with cystic fibrosis (CF) do not consistently participate in physical activities. There is little empirical literature regarding the feelings and attitudes of children with CF toward exercise programs, parental roles in exercise, or factors influencing exercise experiences during research participation.
objectivesThe aim of this study is to describe the exercise experiences of children with CF and their parents during participation in a 6-month program of self-regulated, home-based exercise.
methodsThis qualitative descriptive study was nested within a randomized controlled trial of a self-regulated, home-based exercise program and used serial semistructured interviews conducted individually at 2 and 6 months with 11 purposively selected children with CF and their parent(s).
resultsSix boys and five girls, ages 10-16 years, and parents(nine mothers, four fathers) participated in a total of 44 interviews. Five major thematic categories describing child and parent perceptions and experience of the bicycle exercise program were identified in the transcripts: (a) motivators, (b) barriers, (c) effort/work, (d) exercise routine, and (e) sustaining exercise. Research participation, parent-family participation, health benefits, and the child's personality traits were the primary motivators. Competing activities, priorities, and responsibilities were the major barriers in implementing the exercise program as prescribed. Motivation waned, and the novelty wore off for several (approximately half) parent-child dyads, who planned to decrease or stop the exercise program after the study ended. DISCUSSION: We identified motivators and barriers to a self-regulated, home-based exercise program for children with CF that can be addressed in planning future exercise interventions to maximize the health benefits for children with CF and the feasibility and acceptability to the children and their families.
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Registered trials
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