ArticleHealth expectations : an international journal of public participation in health care and health policy2015
The involvement of gynaecological patients in the development of a clinical guideline for resumption of (work) activities in the Netherlands.
Article in Health expectations : an international journal of public participation in health care and health policy, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 3 of them syntheses that pooled it.
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Who cites it
21 citing papers in PubMed, 3 syntheses or guidelines pooled it, 31 citations in OpenAlex.
- Niche-related outcomes after caesarean section and quality of life: a focus group study and review of literature.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Pooled it
- Interventions Developed with the Intervention Mapping Protocol in Work Disability Prevention: A Systematic Review of the Literature.Journal of occupational rehabilitation · 2019Pooled it
- Practical Considerations for Using Online Methods to Engage Patients in Guideline Development.The patient · 2018Pooled it
- Evaluation and lessons learned regarding Public Involvement: a panel advising on an Alzheimer's disease and related dementia cohort study.Research involvement and engagement · 2026Article
- Community engagement in health guidelines and other normative products: a methodological review.Bulletin of the World Health Organization · 2025Review
- Youth patient and public involvement in health research in the Netherlands: experiences from a multi-stakeholder interview study.Research involvement and engagement · 2025Article
- Patient and family engagement interventions for enhancing patient safety in the perioperative journey: a scoping review.BMJ open quality · 2025Article
- Approaches to Reach Trustworthy Patient Education: A Narrative Review.Healthcare (Basel, Switzerland) · 2024Review
- Patient and public involvement in the development of clinical practice guidelines: a scoping review.BMJ open · 2022Article
- Optimising Multi-stakeholder Practices in Patient Engagement: A Gap Analysis to Enable Focused Evolution of Patient Engagement in the Development and Lifecycle Management of Medicines.Therapeutic innovation & regulatory science · 2021Article
- How to identify, incorporate and report patient preferences in clinical guidelines: A scoping review.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- Evaluating the "return on patient engagement initiatives" in medicines research and development: A literature review.Health expectations : an international journal of public participation in health care and health policy · 2020Review
- How might patient involvement in healthcare quality improvement efforts work-A realist literature review.Health expectations : an international journal of public participation in health care and health policy · 2019Review
- The challenges of living with bipolar disorder: a qualitative study of the implications for health care and research.International journal of bipolar disorders · 2018Article
- Adapting medical guidelines to be patient-centered using a patient-driven process for individuals with sickle cell disease and their caregivers.BMC hematology · 2018Article
- Using patient data to optimize an expert-based guideline on convalescence recommendations after gynecological surgery: a prospective cohort study.BMC surgery · 2017Article
- Patient and Public Involvement in the Development of Healthcare Guidance: An Overview of Current Methods and Future Challenges.The patient · 2017Review
- Participatory approach to design social accountability interventions to improve maternal health services: a case study from the Democratic Republic of the Congo.Global health research and policy · 2017Article
- Substitution of Usual Perioperative Care by eHealth to Enhance Postoperative Recovery in Patients Undergoing General Surgical or Gynecological Procedures: Study Protocol of a Randomized Controlled Trial.JMIR research protocols · 2016Article
- Development and Evaluation of an Educational E-Tool to Help Patients With Non-Hodgkin's Lymphoma Manage Their Personal Care Pathway.JMIR research protocols · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
contextMost initiatives for patient involvement in guideline development have been carried out for chronic diseases. The involvement of patients with incidental and non-threatening diseases is more complicated. Little knowledge is available on how these patient groups can successfully be involved in guideline development.
objectiveTo assess the effectiveness of the involvement of gynaecological patients in the guideline development for resumption of (work) activities after surgery.
designAt three different stages patients were involved in the process: (i) three focus group discussions (FGDs) were organized, (ii) patients were involved for the instruction video, and (iii) patients tested the patient version of the clinical guideline. To assess the effectiveness, an evaluation framework was used. The guideline development process was divided into two parallel trajectories in which patients and professionals were consulted separately. Patients were primarily consulted for the development of the patient version, although their input also influenced the recommendations for resumption of (work) activities after surgery. Professionals were mainly involved in the development of the recommendations of the clinical guideline. DISCUSSION AND
conclusionsThe involvement of gynaecological patients in the guideline development for resumption of (work) activities after surgery was successful in many respects. Consultation of individual patients by means of FGDs and with regular feedback moments has been rather effective for a guideline development process related to an incidental, non-threatening disease for which there is no patient organization. Patients' input contributed to applicability of the clinical guideline in daily practice. Increased patient involvement could be achieved by integration of the two parallel trajectories with additional participatory activities, such as a dialogue meeting.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.