ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2014
A framework for understanding quality of life in individuals without capacity.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
8 citing papers in PubMed, 2 syntheses or guidelines pooled it, 15 citations in OpenAlex.
- Methods and approaches to facilitate inclusion of the views, perspectives and preferences of people with moderate-to-severe dementia in research: A narrative systematic review.International journal of older people nursing · 2024Pooled it
- UK quality statements on end of life care in dementia: a systematic review of research evidence.BMC palliative care · 2015Pooled it
- The development of the ScoPeO-Kids: A new measure of quality of life for children living in contexts of vulnerability.PLOS global public health · 2026Article
- A scoping review of the use of visual tools and adapted easy-read approaches in Quality-of-Life instruments for adults.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Methods and approaches for enhancing communication with people with moderate-to-severe dementia that can facilitate their inclusion in research and service evaluation: Findings from the IDEAL programme.Dementia (London, England) · 2022Article
- Conceptualising 'Benefits Beyond Health' in the Context of the Quality-Adjusted Life-Year: A Critical Interpretive Synthesis.PharmacoEconomics · 2021Review
- Protocol for the IDEAL-2 longitudinal study: following the experiences of people with dementia and their primary carers to understand what contributes to living well with dementia and enhances active life.BMC public health · 2018Article
- TENDINOPATHY AND OBESITY.Arquivos brasileiros de cirurgia digestiva : ABCD = Brazilian archives of digestive surgery · 2016Article
Corrections and comments
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Authors and funding
3 authors at 3 institutions in 1 country.
Funding
Abstract
purposeThe wide range of tools and methods developed for measuring and valuing health-related quality of life for use in economic evaluations are appropriate for use in most populations. However, for certain populations, specific tools may need to be developed to reflect the particular needs of that population. Patients without capacity--particularly patients with severe dementia--are such a population. At present, the tools available to economists for measuring and valuing quality of life in these patients lack validity. Here, we seek to understand the framework within which common instruments have been developed, critique these instruments with respect to patients with severely restricted capacity and to develop a new way of thinking about how to value health-related quality of life in such patients.
methodIn this essay, we describe and critique the conceptual framework by which common instruments used for measuring and valuing quality of life have been developed.
resultsWe show that current common instruments used for measuring and valuing quality of life in general populations are not appropriate for populations with severely restricted capacity.
conclusionsWe propose a new framework for thinking about quality of life in this population, based on notions of observable person-centred outcomes and utility derived from processes of care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.