ArticleThe British journal of general practice : the journal of the Royal College of General Practitioners2013
Coordination of care for individuals with advanced progressive conditions: a multi-site ethnographic and serial interview study.
Article in The British journal of general practice : the journal of the Royal College of General Practitioners, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 2 of them syntheses that pooled it.
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Who cites it
32 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Equitable inclusion of patients with cancer on the palliative care register: a systematic review in primary care.The British journal of general practice : the journal of the Royal College of General Practitioners · 2025Pooled it
- What helps or hinders the communication of poor prognosis between secondary and primary care? A systematic review with narrative synthesis.The British journal of general practice : the journal of the Royal College of General Practitioners · 2025Pooled it
- End-of-life planning with frail patients attending general practice: an exploratory prospective cross-sectional study.The British journal of general practice : the journal of the Royal College of General Practitioners · 2016Trial
- Article
- "We do what needs to be done": caregivers' experiences of healthcare and support for people with multiple long-term conditions in the last year of life.BMC palliative care · 2026Article
- Integration of primary care and palliative care services to improve equality and equity at the end-of-life: Findings from realist stakeholder workshops.Palliative medicine · 2024Article
- Understanding patient views and experiences of the IDENTIfication of PALLiative care needs (IDENTI-PALL): a qualitative interview study.The British journal of general practice : the journal of the Royal College of General Practitioners · 2024Article
- Article
- Palliative Care in Older People with Multimorbidities: A Scoping Review on the Palliative Care Needs of Patients, Carers, and Health Professionals.International journal of environmental research and public health · 2022Article
- Integrating lived experiences of out-of-hours health services for people with palliative and end-of-life care needs with national datasets for people dying in Scotland in 2016: A mixed methods, multi-stage design.Palliative medicine · 2022Article
- Experiences of transitioning between settings of care from the perspectives of patients with advanced illness receiving specialist palliative care and their family caregivers: A qualitative interview study.Palliative medicine · 2022Article
- Provider Communication: The Key to Care Coordination Between Tribal Primary Care and Community Oncology Providers.Oncology nursing forum · 2022Article
- Article
- A mixed-method evaluation of a volunteer navigation intervention for older persons living with chronic illness (Nav-CARE): findings from a knowledge translation study.BMC palliative care · 2020Article
- Palliative Care: Too Good to Be True?Rambam Maimonides medical journal · 2020Review
- Palliative Care and End-of-Life Considerations for the Frail Patient.Anesthesia and analgesia · 2020Review
- Patient perception of disease burden in diffuse cutaneous systemic sclerosis.Journal of scleroderma and related disorders · 2020Article
- Electronic care coordination systems for people with advanced progressive illness: a mixed-methods evaluation in Scottish primary care.The British journal of general practice : the journal of the Royal College of General Practitioners · 2020Article
- Many people in Scotland now benefit from anticipatory care before they die: an after death analysis and interviews with general practitioners.BMJ supportive & palliative care · 2019Article
- Primary palliative Care in General Practice - study protocol of a three-stage mixed-methods organizational health services research study.BMC palliative care · 2018Article
Corrections and comments
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Authors and funding
15 authors.
Funding
Abstract
backgroundCoordination of care for individuals with advanced progressive conditions is frequently poor.
aimTo identify how care is coordinated in generalist settings for individuals with advanced progressive conditions in the last year of life. DESIGN AND
settingA mixed methods study of three UK generalist clinical settings producing three parallel case studies: an acute admissions unit in a regional hospital, a large general practice, and a respiratory outpatient service.
methodEthnographic observations in each setting, followed by serial interviews of patients with advanced progressive conditions and their family carers in the community. A spectrum of clinicians and healthcare workers were also interviewed.
resultsEthnographic observations were conducted for 22 weeks. A total of 56 patients, 25 family carers and 17 clinicians yielded 198 interviews. Very few participants had been identified for a palliative approach. Rapid throughput of hospital patients and time pressures in primary care hindered identification of palliative care needs. Lack of care coordination was evident during emergency admissions and discharges. Patient, families, and professionals identified multiple problems relating to lack of information, communication, and collaboration at care transitions. Family carers or specialist nurses, where present, usually acted as the main care coordinators.
conclusionCare is poorly coordinated in generalist settings for patients in the last year of life, although those with cancer have better coordinated care than other patients. A model to improve coordination of care for all individuals approaching the end of life must ensure that patients are identified in a timely way, so that they can be assessed and their care planned accordingly.
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