ArticleClinical epidemiology2013
Existing data sources for clinical epidemiology: Danish registries for studies of medical genetic diseases.
Article in Clinical epidemiology, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
12 citing papers in PubMed.
- Increased nuchal translucency thickness and normal chromosomal microarray: Danish nationwide cohort study.Ultrasound in obstetrics & gynecology : the official journal of the International Society of Ultrasound in Obstetrics and Gynecology · 2025Article
- Is the first-trimester combined screening result associated with the phenotype of Down syndrome? A population-based cohort study.Prenatal diagnosis · 2023Article
- Hospital Contacts for Psychiatric Disorders in Parents of Children With Cancer in Denmark.JNCI cancer spectrum · 2021Article
- The Danish health care system and epidemiological research: from health care contacts to database records.Clinical epidemiology · 2019Review
- Examining Nonparticipation in the Maternal Follow-up Within the Danish National Birth Cohort.American journal of epidemiology · 2018Article
- First child's impact on parental relationship: an existential perspective.BMC pregnancy and childbirth · 2018Article
- Article
- The Danish Medical Birth Register.European journal of epidemiology · 2018Article
- Incidence and prevalence of multiple endocrine neoplasia 2A in Denmark 1901-2014: a nationwide study.Clinical epidemiology · 2018Article
- Network or regression-based methods for disease discrimination: a comparison study.BMC medical research methodology · 2016Article
- Schizophrenia Spectrum Disorders in a Danish 22q11.2 Deletion Syndrome Cohort Compared to the Total Danish Population--A Nationwide Register Study.Schizophrenia bulletin · 2016Article
- Triploidy--Observations in 154 Diandric Cases.PloS one · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Denmark has an extensive collection of national and regional medical registries. There are many advantages to registry-based research when investigating genetic diseases which, due to their rarity, can be difficult to identify. In this study, we aimed to provide an updated overview of Danish registries for medical genetic conditions and describe how data linkage across registries can be used to collect data on genetic diseases at the individual level and at the family level. We present a list of medical genetic registries in Denmark at the national level, data sources from the departments of clinical genetics and other specialized centers, and project-specific data sources. We also summarize key general registries, such as the Danish National Registry of Patients, the Danish Medical Birth Registry, and the Civil Registration System, which are renowned for their comprehensive and high quality data, and are useful supplemental data sources for genetic epidemiology research. We describe the potential for data linkage across multiple registries, which allows for access to medical histories with follow-up time spanning birth to death. Finally, we provide a brief introduction to the Danish epidemiological research setting and legalities related to data access. The Danish collection of medical registries is a valuable resource for genetic epidemiology research.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.