ArticleJournal of genetic counseling2013
Awareness of genetic counseling and perceptions of its purpose: a survey of the Canadian public.
Article in Journal of genetic counseling, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed, 45 citations in OpenAlex.
- Pilot study of a culturally sensitive intervention to promote genetic counseling for breast cancer risk.BMC health services research · 2022Trial
- The Utilisation of Genetic Counselling Services Amongst Prenatal Healthcare Providers in Gauteng, South Africa.Prenatal diagnosis · 2026Article
- A pilot qualitative study of patient understanding and perceptions of genetic counselors and cascade testing in the context of transthyretin cardiac amyloidosis.Journal of genetic counseling · 2026Article
- Analyzing readability and suitability of webpages related to genetic counseling and genetic testing.Journal of community genetics · 2026Article
- Decision makers' perceptions of integrating genetic counselors into primary care.Family practice · 2025Article
- Genetic Counseling Utilization and Experience Among Caregivers of Children With ASD in the United States.Journal of autism and developmental disorders · 2025Article
- An escape room increases interest and knowledge of the genetic counseling career among diverse students.Journal of genetic counseling · 2025Article
- Exploring individuals' experiences with self-reported unmet need for genetic testing.European journal of human genetics : EJHG · 2025Article
- Assessing the prevalence of unmet need for genetic counseling in Canada and exploring associations with sociodemographic factors.European journal of human genetics : EJHG · 2025Article
- A Comprehensive Gap Analysis of Risk Factors for Transfusion Dependent Thalassemia in Siblings.Indian journal of hematology & blood transfusion : an official journal of Indian Society of Hematology and Blood Transfusion · 2025Article
- Investigating knowledge and attitudes toward genetic testing and counseling among palestinians.Scientific reports · 2025Article
- Navigating the Genetic Frontier for the Integration of Genetic Services into African Healthcare Systems: A scoping review.Research square · 2024Article
- Feasibility of cancer genetic counselling and screening in Cameroon: perceived benefits and barriers.Ecancermedicalscience · 2023Article
- A scoping review of social and behavioral science research to translate genomic discoveries into population health impact.Translational behavioral medicine · 2021Article
- Perceptions of provider's epistemic authority in response to variant of uncertain significance-related recommendations.Journal of genetic counseling · 2020Article
- "They're Not Going to Do Nothing for Me": Research Participants' Attitudes towards Elective Genetic Counseling.Journal of personalized medicine · 2020Article
- Reprogenetics, reproductive risks and cultural awareness: what may we learn from Israeli and Croatian medical students?BMC medical ethics · 2019Article
- Health beliefs associated with readiness for genetic counseling among high risk breast cancer survivors.The breast journal · 2019Article
- Development and Pilot Testing of a Decision Aid for Genomic Research Participants Notified of Clinically Actionable Research Findings for Cancer Risk.Journal of genetic counseling · 2018Article
- "If It Helps, It's Worth a Try": an Investigation of Perceptions and Attitudes about Genetic Counseling among Southern Manitoba Hutterites.Journal of genetic counseling · 2017Article
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
Abstract
Genetic counseling can result in better outcomes when clients understand what to expect, and at least theoretically, at some point in their lifespan, anyone could be referred for or benefit from genetic counseling. Thus, in order to identify (and ultimately address) issues around awareness of genetic counseling and perceptions of its purpose, we surveyed the Canadian general population. We acquired 1,000 telephone numbers corresponding to a demographically representative sample of Canada from Survey Sampling International, and invited individuals to participate in a telephone-based survey. We administered a purpose-designed survey (in either French or English) comprising questions regarding: demographics, whether or not the individual had heard of genetic counseling, and 15 Likert scale-rated (strongly disagree-strongly agree) items about the possible purposes of genetic counseling. Responses to these 15 items were used to generate a total "knowledge score". Of the 1,000 numbers, n = 372 could not be reached, and the survey was successfully administered to n = 188 individuals (response rate 30 %). Most respondents (n = 129, 69 %) had not heard of genetic counseling, and substantial proportions thought that genetic counseling aims to prevent genetic diseases and abnormalities, help couples have children with desirable characteristics, and help people to understand their ancestry. These data could be used to inform the strategy for development of future awareness efforts, and as a baseline from which to measure their effects.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.