ArticleHealth expectations : an international journal of public participation in health care and health policy2015
Heart failure patients' descriptions of participation in structured home care.
Article in Health expectations : an international journal of public participation in health care and health policy, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 2 of them syntheses that pooled it.
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Who cites it
10 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Patient participation in self-monitoring regarding healthcare of heart failure: an integrated systematic review.BMC primary care · 2025Pooled it
- The perceptions and experiences of community nurses and patients towards shared decision-making in the home setting: An integrative review.Journal of advanced nursing · 2025Pooled it
- Patient-healthcare Professional Dialog from the Patient's Perspective: Concept Analysis Based on Literature Review.Journal of patient experience · 2025Article
- Challenges and opportunities for increasing patient involvement in heart failure self-care programs and self-care in the post-hospital discharge period.Research involvement and engagement · 2023Review
- Factors Affecting Patient and Physician Engagement in Remote Health Care for Heart Failure: Systematic Review.JMIR cardio · 2022Review
- "In August, I Counted 24 Different Names": Swedish Older Adults' Experiences of Home Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2021Article
- 'Who is on your health-care team?' Asking individuals with heart failure about care team membership and roles.Health expectations : an international journal of public participation in health care and health policy · 2017Article
- Patient participation in patients with heart failure receiving structured home care--a prospective longitudinal study.BMC health services research · 2014Article
- Patient Participation in Nursing Care: Views From Ghanaian Nurses, Nursing Students, and Patients.SAGE open nursingArticle
- Self Managing Heart Failure in Remote Australia - Translating Concepts into Clinical Practice.Current cardiology reviewsReview
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundTo strengthen the patient's position in health care, patient participation has been decreed in policy documents and legalizations. For patients suffering from heart failure, self-care is an important part of disease management and participation is crucial to succeed with this.
objectiveTo examine how heart failure patients receiving structured home care described participation in the care.
designQualitative study. SETTING AND
participantsThirteen men and six women, aged between 63 and 90 years, were interviewed. The informants received structured home care at four home care units in Sweden. The interviews were analysed using qualitative content analysis.
resultsFive categories with associated subcategories describing participation in care were identified: communication between patients and health-care professionals (HCPs) including time and space for dialogue and exchange of care-related information, accessibility to care through awareness of the plan for home visits or feasibility to initiate home visits, active involvement in care by engaging in self-care and collaboration with HCPs, trustful relation with HCPs, with confidence in competence and individually adapted care, options for decision making, by making decisions or entrusting decisions.
conclusionsPatient participation could be strengthened through structured home care. Participation was facilitated when there was a balance between the patient's own preferences to influence care and the health-care professional's actions and values and the organization of care. Barriers to participation could depend on the health-care organization, lack of continuity and confidence in HCPs.
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