ArticleJournal of genetic counseling2014
A qualitative inquiry of the financial concerns of couples opting to use preimplantation genetic diagnosis to prevent the transmission of known genetic disorders.
Article in Journal of genetic counseling, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed.
- Decision-Making Around Preimplantation Genetic Testing by Individuals With Neurofibromatosis Type I: A Qualitative Study.Journal of genetic counseling · 2026Article
- Decisions of young women with breast cancer regarding fertility preservation before cancer treatment and family building after treatment.Journal of cancer survivorship : research and practice · 2025Article
- Reproductive options and genetic testing for patients with an inherited cardiac disease.Nature reviews. Cardiology · 2025Review
- Mapping ethical, legal, and social implications (ELSI) of preimplantation genetic testing (PGT).Journal of assisted reproduction and genetics · 2024Review
- Preimplantation Genetic Testing for Adult-Onset Neurodegenerative Disease: Considerations for Access, Utilization, and Counseling.Neurology · 2023Article
- Nanoparticle-mediated genome editing in single-cell embryos via peptide nucleic acids.Bioengineering & translational medicine · 2023Article
- Embryo selection through artificial intelligence versus embryologists: a systematic review.Human reproduction open · 2023Article
- CDH1 variants leading to gastric cancer risk management decision-making experiences in emerging adults: 'I am not ready yet'.Journal of genetic counseling · 2021Article
- ART with PGD: Risky heredity and stratified reproduction.Reproductive biomedicine & society online · 2020Article
- Performance of a deep learning based neural network in the selection of human blastocysts for implantation.eLife · 2020Article
- Literacy assessment of preimplantation genetic patient education materials exceed national reading levels.Journal of assisted reproduction and genetics · 2020Article
- What Results Should Be Returned from Opportunistic Screening in Translational Research?Journal of personalized medicine · 2020Article
- Confidential genetic testing and electronic health records: A survey of current practices among Huntington disease testing centers.Molecular genetics & genomic medicine · 2020Article
- Review of 10 years of preimplantation genetic diagnosis in South Africa: implications for a low-to-middle-income country.Journal of assisted reproduction and genetics · 2019Article
- Canadian genetic healthcare professionals' attitudes towards discussing private pay options with patients.Molecular genetics & genomic medicine · 2019Article
- Patients' preimplantation genetic testing decision-making experience: an opinion on related psychological frameworks.Human reproduction open · 2019Article
- Uptake of Preimplantation Genetic Diagnosis in Female BRCA1 and BRCA2 Mutation Carriers.Journal of genetic counseling · 2018Article
- Challenges, Dilemmas and Factors Involved in PGD Decision-Making: Providers' and Patients' Views, Experiences and Decisions.Journal of genetic counseling · 2018Article
- Public Perceptions of Ethical, Legal and Social Implications of Pre-implantation Genetic Diagnosis (PGD) in Malaysia.Science and engineering ethics · 2017Article
- Comparing appropriateness and equivalence of email interviews to phone interviews in qualitative research on reproductive decisions.Applied nursing research : ANR · 2017Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
Preimplantation genetic diagnosis (PGD) is an innovative prenatal testing option because the determination of whether a genetic disorder or chromosomal abnormality is evident occurs prior to pregnancy. However, PGD is not covered financially under the majority of private and public health insurance institutions in the United States, leaving couples to decide whether PGD is financially feasible. The aim of this qualitative study was to understand the role of finances in the decision-making process among couples who were actively considering PGD. In-depth, semi-structured interviews were completed with 18 genetic high-risk couples (36 individual partners). Grounded theory guided the analysis, whereby three themes emerged: 1) Cost is salient, 2) Emotions surrounding affordability, and 3) Financial burden and sacrifice. Ultimately, couples determined that the opportunity to avoid passing on a genetic disorder to a future child was paramount to the cost of PGD, but expressed financial concerns and recognized financial access as a major barrier to PGD utilization.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.