ArticleMedical care2016
Validity of Race, Ethnicity, and National Origin in Population-based Cancer Registries and Rapid Case Ascertainment Enhanced With a Spanish Surname List.
Article in Medical care, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
10 citing papers in PubMed.
- Sociodemographic inequities in overall survival among younger and older women with cervical cancer.Cancer causes & control : CCC · 2025Article
- Deriving risk-adapted starting ages of breast cancer screening according to polygenic risk score.JNCI cancer spectrum · 2025Article
- Accuracy of patient race and ethnicity data in a central cancer registry.Cancer causes & control : CCC · 2024Article
- Article
- Methods for retrospectively improving race/ethnicity data quality: a scoping review.Epidemiologic reviews · 2023Article
- Mediation of Racial and Ethnic Inequities in the Diagnosis of Advanced-Stage Cervical Cancer by Insurance Status.JAMA network open · 2023Article
- A Scoping Review of Approaches to Improving Quality of Data Relating to Health Inequalities.International journal of environmental research and public health · 2022Article
- An investigation of survivorship clinic attendance among childhood cancer survivors living in a five-state rural region.Journal of cancer survivorship : research and practice · 2018Article
- Conditional survival of pediatric, adolescent, and young adult soft tissue sarcoma and bone tumor patients.Cancer epidemiology · 2017Article
- Assessment Disparities among Pediatric Patients: Advantages of Pictorial Descriptions.Frontiers in pediatrics · 2013Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
backgroundAccurate information regarding race, ethnicity, and national origins is critical for identifying disparities in the cancer burden.
objectivesTo examine the use of a Spanish surname list to improve the quality of race-related information obtained from rapid case ascertainment (RCA) and to estimate the accuracy of race-related information obtained from cancer registry records collected by routine reporting. SUBJECTS: Self-reported survey responses of 3954 participants from California enrolled in the Cancer Care Outcomes Research and Surveillance Consortium. MEASURES: Sensitivity, specificity, positive predictive value, and percent agreement. We used logistic regression to identify predictors of underreporting and overreporting of a race/ethnicity.
resultsUse of the Spanish surname list increased the sensitivity of RCA for Latino ethnicity from 37% to 83%. Sensitivity for cancer registry records collected by routine reporting was ≥95% for whites, blacks, and Asians, and specificity was high for all groups (86%-100%). However, patterns of misclassification by race/ethnicity were found that could lead to biased cancer statistics for specific race/ethnicities. Discordance between self-reported and registry-reported race/ethnicity was more likely for women, Latinos, and Asians.
conclusionsMethods to improve race and ethnicity data, such as using Spanish surnames in RCA and instituting data collection guidelines for hospitals, are needed to ensure minorities are accurately represented in clinical and epidemiological research.
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