ArticleEuropean journal of human genetics : EJHG2014
Consanguineous marriage and reproductive risk: attitudes and understanding of ethnic groups practising consanguinity in Western society.
Article in European journal of human genetics : EJHG, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it, 47 citations in OpenAlex.
- Mapping the Diverse Genetic Disorders and Rare Diseases Among the Syrian Population: Implications on Refugee Health and Health Services in Host Countries.Journal of immigrant and minority health · 2020Pooled it
- Tay-Sachs disease in a child of indigenous Guatemalan-Mayan origin with macular brown spots and perifoveal whitening.American journal of ophthalmology case reports · 2025Article
- Nationwide survey on awareness of consanguinity and genetic diseases in Saudi Arabia: challenges and potential solutions to reduce the national healthcare burden.Human genomics · 2024Article
- Assessment of genetic familiarity and genetic knowledge among Palestinian university students.BMC medical education · 2024Article
- Patient-facing genetic and genomic mobile apps in the UK: a systematic review of content, functionality, and quality.Journal of community genetics · 2022Review
- Whole Exome Sequencing Is the Minimal Technological Approach in Probands Born to Consanguineous Couples.Genes · 2021Article
- Consanguinity-based analysis of exome sequencing yields likely genetic causes in patients with inherited retinal dystrophy.Orphanet journal of rare diseases · 2021Article
- Challenges to effective and autonomous genetic testing and counseling for ethno-cultural minorities: a qualitative study.BMC medical ethics · 2020Article
- Consanguinity and Autism.Current psychiatry reports · 2020Review
- Reprogenetics, reproductive risks and cultural awareness: what may we learn from Israeli and Croatian medical students?BMC medical ethics · 2019Article
- Maple syrup urine disease mutation spectrum in a cohort of 40 consanguineous patients and insilico analysis of novel mutations.Metabolic brain disease · 2019Article
- Enhancing health literacy through co-design: development of culturally appropriate materials on genetic risk and customary consanguineous marriage.Primary health care research & development · 2019Article
- Targeted next-generation sequencing analysis in couples at increased risk for autosomal recessive disorders.Orphanet journal of rare diseases · 2018Article
- Responding to the increased genetic risk associated with customary consanguineous marriage among minority ethnic populations: lessons from local innovations in England.Journal of community genetics · 2016Article
- Reprogenetics, Genetic Tools and Reproductive Risk: Attitudes and Understanding Among Ethnic Groups in Israel.Journal of genetic counseling · 2016Article
- Do people from the Jewish community prefer ancestry-based or pan-ethnic expanded carrier screening?European journal of human genetics : EJHG · 2016Article
- Attitude of Saudi Arabian adults towards consanguineous marriage.Qatar medical journal · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Consanguineous couples should be adequately informed about their increased reproductive risk and possibilities for genetic counselling. Information may only be effective if it meets the needs of the target group. This study aimed to gain more insight into: (1) attitudes of people belonging to ethnic groups in Western society towards consanguinity and their understanding of risk for offspring; and (2) their attitudes regarding reproductive information targeted at consanguineous couples. Dutch Moroccans and Turks were invited to complete an online questionnaire by snowball sampling and by placing a link on two popular Dutch Moroccan/Turkish forum websites between September and October 2011. The questionnaire was completed by 201 individuals who were, on average, neither positive nor negative towards consanguinity. Respondents with a consanguineous partner were more positive, estimated the risk for the offspring lower and were less positive about the provision of risk information to consanguineous couples when compared with respondents without a consanguineous partner. Participants of Turkish origin had a more negative attitude towards consanguinity and estimated the reproductive risk higher than Moroccan participants. More than half of the respondents thought that information should be given before marriage, whereas only 10% thought it should never be provided. The general practitioner was most often mentioned (54%) as the designated professional to inform people. Information about genetic risks related to consanguinity should be offered early, preferably before marriage. The diversity of the target population requires various strategies to disseminate information and reach consanguineous couples with the offer of genetic counselling.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.