Evidence map›Paper›PMID 23919966›Full record

ArticlePalliative & supportive care2014

Preliminary study of themes of meaning and psychosocial service use among informal cancer caregivers.

Allison J Applebaum, Carol J Farran, Allison M Marziliano, Anna R Pasternak, William Breitbart

Registry-linked trialAbstract read
In one paragraph

Article in Palliative & supportive care, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03746314 (Supportive Care Service Availability for Cancer Caregivers in Community Oncology Practices), which is not on this map. Cited by 38 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
38citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03746314 completednot on this mapstarted 2018, after this paper: background citation

Supportive Care Service Availability for Cancer Caregivers in Community Oncology Practices

TypeobservationalSponsorWake Forest University Health SciencesRan2018 to 2020Enrolled910ConditionsSupportive Care
3 · Its place in the literature

Who cites it

38 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Caregivers' Internet-Delivered Insomnia Intervention Engagement and Benefit: SHUTi-CARE Trial Primary Quantitative Analysis.Annals of behavioral medicine : a publication of the Society of Behavioral Medicine · 2024
    Trial
  3. Article
  4. Moral dilemma of family caregivers of urostomy patients: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  5. Article
  6. Observational
  7. Caregiver Experiences With an Internet-Delivered Insomnia Intervention: SHUTi-CARE Trial Primary Qualitative Analysis.Annals of behavioral medicine : a publication of the Society of Behavioral Medicine · 2024
    Article
  8. Article
  9. A qualitative exploration of the dynamics of guilt experience in family cancer caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023
    Article
  10. Article
  11. Review
  12. Article
  13. Article
  14. Article
  15. Article
  16. Article
  17. Documentation of Caregivers as a Standard of Care.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2021
    Article
  18. Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Allison J ApplebaumMemorial Sloan-Kettering Cancer Center, New York, New York.
Carol J FarranRush University, Chicago, Illinois.
Allison M MarzilianoMemorial Sloan-Kettering Cancer Center, New York, New York.
Anna R PasternakDartmouth College, Hanover, New Hampshire.
William BreitbartMemorial Sloan-Kettering Cancer Center, New York, New York.

Funding

X-RAY CRYSTALLOGRAPHYP30CA008748 · NCI · SLOAN-KETTERING INSTITUTE FOR CANCER RES · PI Hongbiao Carl Lekaye · 1985 to 2026
$347.4M
NCI NIH HHS P30 CA008748
6 · The paper itself

Abstract

objectiveThe burden experienced by informal caregivers (ICs) of patients with advanced cancer is well documented. ICs are at risk for anxiety and depression, as well as existential concerns that arise when a loved one is facing a terminal illness. Few psychosocial interventions focus on existential concerns of ICs. However, a growing body of literature indicates that finding meaning in the experience of being an IC for a person with cancer has the potential to buffer against burden. The purpose of this study was to collect preliminary descriptive data regarding caregiver burden, meaning, and psychosocial service use to inform the adaptation of a meaning-centered intervention for ICs.

methodTwenty-five caregivers and 32 patients completed brief, anonymous questionnaires that asked about their role as a caregiver or their perception of their loved one as a caregiver, caregiver burden, and psychosocial service use.

resultsCaregivers and patients identified anxiety and depression as top correlates of burden experienced by caregivers, whereas guilt, issues with role/sense of identity, and self-care were additional areas of concern. The majority of caregivers were not receiving psychosocial services, although they almost unanimously reported desiring services. A greater proportion of patients than caregivers believed that an intervention designed to enhance meaning would ameliorate burden, but, nevertheless, close to three quarters of caregivers reported interest in participating in such an intervention. SIGNIFICANCE OF

resultsThese study findings provide further support for, at a minimum, engaging ICs of persons with advanced cancer in interventions that address existential issues, mental health, self-care, and service use. Such interventions are likely to improve the quality of life of both patients with cancer and their ICs.

Indexed as

Social SupportActivities of Daily LivingAnxietyCancer Care FacilitiesCaregiversCounselingDepressionFamily RelationsHumansNeoplasmsOutpatientsStress, PsychologicalSurveys and Questionnaires

Identifiers

PMID23919966
PMCPMC5084449

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.