ArticleHealth and quality of life outcomes2013
Participation and social functioning in patients with fibromyalgia: development and testing of a new questionnaire.
Article in Health and quality of life outcomes, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed.
- Evaluation of a self-management patient education program for patients with fibromyalgia syndrome: study protocol of a cluster randomized controlled trial.BMC musculoskeletal disorders · 2016Trial
- Unraveling the Complex Web of Fibromyalgia: A Narrative Review.Medicina (Kaunas, Lithuania) · 2024Review
- Societal participation in ehlers-danlos syndromes and hypermobility spectrum disorder, compared to fibromyalgia and healthy controls.PloS one · 2022Article
- Linking Practice Adoption of Patient Engagement Strategies and Relational Coordination to Patient-Reported Outcomes in Accountable Care Organizations.The Milbank quarterly · 2019Article
- Translation and psychometric properties of the King's Sarcoidosis Questionnaire (KSQ) in German language.Health and quality of life outcomes · 2019Article
- A weight loss intervention delivered by peer coaches in primary care: Rationale and study design of the PROMISE trial.Contemporary clinical trials · 2018Article
- The reliability and validity of the Turkish version of the Fibromyalgia Participation Questionnaire.European journal of rheumatology · 2018Article
- Psychometric properties of the German version of the Leicester Cough Questionnaire in sarcoidosis.PloS one · 2018Article
- [Evaluation of effectiveness of education in rheumatology : Recommendations according to a patient education model].Zeitschrift fur Rheumatologie · 2017Article
- Validation and cross-cultural adaptation of the 'Fibromyalgia Participation Questionnaire' to the Spanish population: study protocol.Rheumatology international · 2015Article
- Analysing Biological Rhythms in Fibromyalgia Syndrome.The West Indian medical journal · 2015Article
- Development and evaluation of the PI-G: a three-scale measure based on the German translation of the PROMIS ® pain interference item bank.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2014Article
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Authors and funding
3 authors.
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Abstract
backgroundWhile there are numerous instruments for capturing the symptoms of fibromyalgia syndrome (FMS) patients, there is a lack of questionnaires capable of measuring in detail FMS patients' participation and social functioning. It was our aim to develop and methodologically test a new patient questionnaire specific to FMS measuring these concepts (the "Fibromyalgia Participation Questionnaire" FPQ).
methodsWe first conducted a qualitative prestudy (focus groups, N = 38) to identify which impairments FMS patients experience in daily life because of their illness. To analyze the data we developed a coding system that contained 10 supercategories and a total of 105 subcategories. Items for the FPQ were developed from the subcategories. The psychometric analysis was done on a sample of N = 256 FMS patients undergoing inpatient rehabilitation in Germany.
resultsThe final version of the FPQ contained 27 items and three scales (participation in social life FPQ-S, 11 items; participation in daily life FPQ-D, 11 items, participation in work-life FPQ-W 5 items). The FPQ displays good distribution properties, all the scales are unidimensional, and the scales fit to the Rasch model. Cronbach's Alpha range from 0.85 to 0.94. We noted indications of construct validity in that the FPQ correlates as expected with the Fibromyalgia Impact Questionnaire (physical scale), Pain Disability Index and scales from the PROMIS® item banks for satisfaction with participation. The FPQ scales generally reveal greater responsiveness than other instruments. By linking FPQ items to the categories of the International Classification of Functioning, Disability and Health (ICF) we demonstrate content validity.
conclusionsThe FPQ captures participation and social functioning in FMS patients. As its psychometric properties are good, it can be recommended for use in evaluation studies and clinical trials.
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