Evidence map›Paper›PMID 23893443›Full record

SynthesisMovement disorders : official journal of the Movement Disorder Society2013

Dystonia rating scales: critique and recommendations.

Alberto Albanese, Francesca Del Sorbo, Cynthia Comella, H A Jinnah, Jonathan W Mink, Bart Post, Marie Vidailhet, Jens Volkmann, Thomas T Warner, Albert F G Leentjens and 4 more

2 registry-linked trialsOpen access · greenAbstract readSystematic Review
In one paragraph

Synthesis in Movement disorders : official journal of the Movement Disorder Society, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 99 papers, 4 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
99citing papers in PubMed, 4 pooled it
7.4field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT02074293 phase1 / phase2unknown statusnot on this mapstarted 2016, after this paper: background citation

ASIS for Botox in Cervical Dystonia

TypeinterventionalSponsorli nguyenRan2016 to 2017Enrolled60ConditionsCervical Dystonia Adults ,, Abnormal Head Position and Neck Pain for These 7 Muscle Groups: Splenius,Scalene,Sterno-cleido-mastoid,Levator Scapulae,Semispinalis,Trapezius,and Longissimus.ArmsGadolinium, Efficacy of Botox intramuscularly at Week 6, Efficacy of Botox intramuscularly at Week 12, Efficacy of Botox intramuscularly at Week 18, Efficacy of Botox intramuscularly at Week 24
NCT03508882 phase4completednot on this mapstarted 2015, after this paper: background citation

Pretarsal Versus Preseptal Botulinum Toxin for Patients With Eyelid Spasm: a Randomized, Triple-blind, Placebo-controlled, Cross-over Clinical Trial

TypeinterventionalSponsorThe University of Hong KongRan2015 to 2019Enrolled100ConditionsBlepharospasm, Hemifacial Spasm, Botulinum Toxins, Type AArmsBotulinum Toxin Type A 100Unit/Vial (Product), Saline Solution for Injection
3 · Its place in the literature

Who cites it

99 citing papers in PubMed, 4 syntheses or guidelines pooled it, 199 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
  3. Pooled it
  4. Pooled it
  5. Trial
  6. Trial
  7. Trial
  8. Article
  9. Article
  10. Investigating Sleep Concerns in Cervical Dystonia.Movement disorders clinical practice · 2026
    Article
  11. Article
  12. Review
  13. Article
  14. Article
  15. Article
  16. Article
  17. Article
  18. Article
  19. Article
  20. Article

39 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 11 institutions in 7 countries.

Alberto AlbaneseIstituto di Neurologia, Università Cattolica del Sacro Cuore, Milano, Italy; Neurologia I, Istituto Neurologico Carlo Besta, Milano, Italy. alberto.albanese@unicatt.it
Francesca Del Sorbo
Cynthia Comella
H A Jinnah
Jonathan W Mink
Bart Post
Marie Vidailhet
Jens Volkmann
Thomas T Warner
Albert F G Leentjens
Pablo Martinez-Martin
Glenn T Stebbins
Christopher G Goetz
Anette Schrag
Rush University Medical Center · USFondazione IRCCS Istituto Neurologico Carlo Besta · ITBiomedical Research Networking Center on Neurodegenerative Diseases · ESEmory University · USMaastricht University · NLRadboud University Nijmegen · NLSorbonne Université · FRThe Royal Free Hospital · GBUniversity College London · GBUniversity of Rochester Medical Center · USUniversity of Würzburg · DE

Funding

Dystonia CoalitionU54NS065701 · NINDS · EMORY UNIVERSITY · PI JINNAH, HYDER A · 2009 to 2014
$7.0M
Dystonia CoalitionU54TR001456 · NCATS · EMORY UNIVERSITY · PI JINNAH, HYDER A · 2015 to 2016
$2.5M
NCATS NIH HHS U54 TR001456NINDS NIH HHS U54 NS065701
6 · The paper itself

Abstract

Many rating scales have been applied to the evaluation of dystonia, but only few have been assessed for clinimetric properties. The Movement Disorders Society commissioned this task force to critique existing dystonia rating scales and place them in the clinical and clinimetric context. A systematic literature review was conducted to identify rating scales that have either been validated or used in dystonia. Thirty-six potential scales were identified. Eight were excluded because they did not meet review criteria, leaving 28 scales that were critiqued and rated by the task force. Seven scales were found to meet criteria to be "recommended": the Blepharospasm Disability Index is recommended for rating blepharospasm; the Cervical Dystonia Impact Scale and the Toronto Western Spasmodic Torticollis Rating Scale for rating cervical dystonia; the Craniocervical Dystonia Questionnaire for blepharospasm and cervical dystonia; the Voice Handicap Index (VHI) and the Vocal Performance Questionnaire (VPQ) for laryngeal dystonia; and the Fahn-Marsden Dystonia Rating Scale for rating generalized dystonia. Two "recommended" scales (VHI and VPQ) are generic scales validated on few patients with laryngeal dystonia, whereas the others are disease-specific scales. Twelve scales met criteria for "suggested" and 7 scales met criteria for "listed." All the scales are individually reviewed in the online information. The task force recommends 5 specific dystonia scales and suggests to further validate 2 recommended generic voice-disorder scales in dystonia. Existing scales for oromandibular, arm, and task-specific dystonia should be refined and fully assessed. Scales should be developed for body regions for which no scales are available, such as lower limbs and trunk.

Indexed as

Health Planning GuidelinesSeverity of Illness IndexDatabases, FactualDystoniaHumansPsychometricsSurveys and Questionnairesblepharospasmbotulinum neurotoxinsdystoniasrating scalestorticollis

Identifiers

PMID23893443
PMCPMC4207366
OpenAlexW1779254138

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.