Evidence map›Paper›PMID 23890928›Full record

ArticleThe American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry2014

Correlates of quality of life for individuals with dementia living at home: the role of home environment, caregiver, and patient-related characteristics.

Laura N Gitlin, Nancy Hodgson, Catherine Verrier Piersol, Edward Hess, Walter W Hauck

Registry-linked trialAbstract read
In one paragraph

Article in The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06264362 (Developing a Nonpharmacological Pain Intervention for Community-dwelling Older Adults With Dementia), which is not on this map. Cited by 26 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
26citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06264362 nanot yet recruitingnot on this mapstarted 2025, after this paper: background citation

Developing a Nonpharmacological Pain Intervention for Community-dwelling Older Adults With Dementia

TypeinterventionalSponsorDrexel UniversityRan2025 to 2027Enrolled40ConditionsPain, Chronic, Dementia, Mild, Mobility Limitation, Physical DisabilityArmsTailored Physical Activity Program
3 · Its place in the literature

Who cites it

26 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Accessible Home Environments for People with Functional Limitations: A Systematic Review.International journal of environmental research and public health · 2016
    Pooled it
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  7. Article
  8. Housing characteristics of older adults with cognitive impairment.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025
    Article
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  10. Review
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  19. Physical Attributes of Housing and Elderly Health: A New Dynamic Perspective.International journal of environmental research and public health · 2019
    Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Laura N GitlinJohns Hopkins University School of Nursing, Baltimore, MD. Electronic address: lgitlin1@jhu.edu.
Nancy HodgsonJohns Hopkins University School of Nursing, Baltimore, MD.
Catherine Verrier PiersolJefferson Elder Care, Thomas Jefferson University, Philadelphia, PA.
Edward HessJohns Hopkins University School of Medicine, Baltimore, MD.
Walter W HauckSycamore Consulting LLC, New Hope, PA.

Funding

Reducing Agitation in Dementia Patients at Home: The Customized Activity TrialR01AG041781 · NIA · JOHNS HOPKINS UNIVERSITY · PI GITLIN, LAURA N. · 2012 to 2017
$3.3M
Reducing Family Caregiver Upset with Disruptive BehaviorR01AG022254 · NIA · THOMAS JEFFERSON UNIVERSITY · PI GITLIN, LAURA N. · 2002 to 2006
$2.7M
NIA NIH HHS R01 AG022254NIA NIH HHS R01 AG041781NIA NIH HHS R01 AG22254
6 · The paper itself

Abstract

objectivesTo examine prevalence of modifiable risk factors and their contribution to patient quality of life (QoL) as rated by dementia patients and family caregivers.

designCross-sectional.

settingHome environment.

participants88 patients and their caregivers. MEASUREMENTS: Modifiable characteristics of home environments, patients, and caregivers were observed or obtained through interview. Demographics and ratings of patients' QoL were obtained from patients and caregivers.

resultsPatients had mean Mini-mental Status Examination (MMSE) score = 17.7 ± 4.6, (range: 10-28) on an average 7.7 ± 2.4 neuropsychiatric behaviors, 6.0 ± 3.1 health conditions and moderate functional challenges; 70.7% (N = 58) had fall risk; 60.5% (N = 52) had sleep problems at least once weekly; and 42.5% (N = 37) had pain. An average of 8.1 ± 5.2 home hazards and 5.4 ± 4.1 adaptations were observed; 51.7% had unmet device/navigation needs. Patients' and caregivers' QoL ratings were unrelated to MMSE; and patients' self-rated QoL was higher than rated by caregivers. Number of health conditions and unmet device/navigation needs were inversely associated with patient self-rated QoL, and number of health conditions, frequency of behaviors, and level of negative communications were inversely associated with caregiver's assessment of patient QoL. Positive endorsement of caregiving was positively associated with caregiver's appraisal of patient QoL. Other factors were unrelated.

conclusionsMost patients lived at home with high fall risk, unmanaged behavioral symptoms, pain, sleep disturbances, environmental challenges, and multiple hazards. Except for health, factors associated with lower QoL differed for patients and caregivers. Results suggest need to improve QoL by addressing modifiable risk factors and tailoring interventions to patient and caregiver perspectives.

Indexed as

CaregiversQuality of LifeActivities of Daily LivingAdultAgedAged, 80 and overDementiaFemaleHome NursingHumansMaleMiddle AgedNeuropsychological TestsPrevalenceRisk FactorsSurveys and QuestionnairescaregivingDementia carehealth-related quality of lifeneuropsychiatric behaviors

Identifiers

PMID23890928
PMCPMC4091677

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.