Evidence map›Paper›PMID 23875563›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2015

Exploring the boundary of a specialist service for adults with intellectual disabilities using a Delphi study: a quantification of stakeholder participation.

Eva-Maria Hempe, Cecily Morrison, Anthony Holland

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

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1citing papers in PubMed
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1 · What the graph read from it

What it found

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2 · The registry

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3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

3 authors.

Eva-Maria HempeDepartment of Engineering, Engineering Design Centre, University of Cambridge, Cambridge, UK.
Cecily MorrisonDepartment of Engineering, Engineering Design Centre, University of Cambridge, Cambridge, UK.
Anthony HollandDepartment of Psychiatry, Section of Developmental Psychiatry, University of Cambridge, Cambridge, UK.

Funding

Department of Health
6 · The paper itself

Abstract

backgroundThere are arguments that a specialist service for adults with intellectual disabilities is needed to address the health inequalities that this group experiences. The boundary of such a specialist service however is unclear, and definition is difficult, given the varying experiences of the multiple stakeholder groups.

objectivesThe study reported here quantitatively investigates divergence in stakeholders' views of what constitutes a good specialist service for people with intellectual disabilities. It is the first step of a larger project that aims to investigate the purpose, function and design of such a specialist service. The results are intended to support policy and service development. STUDY

designA Delphi study was carried out to elicit the requirements of this new specialist service from stakeholder groups. It consisted of three panels (carers, frontline health professionals, researchers and policymakers) and had three rounds. The quantification of stakeholder participation covers the number of unique ideas per panel, the value of these ideas as determined by the other panels and the level of agreement within and between panels.

findingsThere is some overlap of ideas about of what should constitute this specialist service, but both carers and frontline health professionals contributed unique ideas. Many of these were valued by the researchers and policymakers. Interestingly, carers generated more ideas regarding how to deliver services than what services to deliver. Regarding whether ideas are considered appropriate, the variation both within and between groups is small. On the other hand, the feasibility of solutions is much more contested, with large variations among carers.

conclusionsThis study provides a quantified representation of the diversity of ideas among stakeholder groups regarding where the boundary of a specialist service for adults with learning disabilities should sit. The results can be used as a starting point for the design process. The study also offers one way to measure the impact of participation for those interested in participation as a mechanism for service improvement.

Indexed as

SpecializationAdultAttitude of Health PersonnelCaregiversDelphi TechniqueHealth Services ResearchHumansIntellectual DisabilityDelphi studyintellectual disabilitiesparticipationquantitative evaluationservice designstakeholder engagement

Identifiers

PMID23875563
PMCPMC5060875

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