Evidence map›Paper›PMID 23823627›Full record

ArticlePloS one2013

Role Preferences of People with Multiple Sclerosis: Image-Revised, Computerized Self-Administered Version of the Control Preference Scale.

Alessandra Solari, Andrea Giordano, Jurgen Kasper, Jelena Drulovic, An van Nunen, Liina Vahter, Frederique Viala, Erika Pietrolongo, Maura Pugliatti, Carlo Antozzi and 4 more

Abstract read
In one paragraph

Article in PloS one, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers.

0numbers the graph read from it
0cells of the map it votes in
29citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

29 citing papers in PubMed.

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  20. Patient Preferences Regarding Shared Decision Making in the Emergency Department: Findings From a Multisite Survey.Academic emergency medicine : official journal of the Society for Academic Emergency Medicine · 2018
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Alessandra SolariUnit of Neuroepidemiology, Foundation Istituto Di Ricovero e Cura a Carattere Scientifico Neurological Institute C. Besta, Milan, Italy.
Andrea Giordano
Jurgen Kasper
Jelena Drulovic
An van Nunen
Liina Vahter
Frederique Viala
Erika Pietrolongo
Maura Pugliatti
Carlo Antozzi
Davide Radice
Sascha Köpke
Christoph Heesen
AutoMS project

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe Control Preference Scale (CPS) is the most frequently used measure of patients' preferred roles in treatment decisions. We revised the original CPS and developed a new computerized patient self-administered version (eCPS). We used the eCPS to assess role preferences, and their determinants, in Italian and German people with multiple sclerosis (MS).

methodsNew cartoons were produced, based on MS health professional and patient input/feedback and previous findings, and pilot tested on 26 Italian and German MS patients. eCPS acceptability and reliability (weighted kappa statistic, wK) in comparison to the original tool, was determined in 92 MS patients who received both CPS versions in random order.

resultsThe new cartoons were well accepted and easily interpreted by patients, who reported they based their choices mainly on the text and considered the images of secondary importance. eCPS reliability was moderate (wK 0.53, 95% confidence interval [CI] 0.40-0.65) and similar to the test-retest reliability of face-to-face administration assessed in a previous publication (wK 0.65, 95% CI 0.45-0.81). Higher education (odds ratio [OR] 3.74, 95% CI 1.00-14.05) and German nationality (OR 10.30, 95% CI 3.10-34.15) were associated with preference for an active role in the logistic model.

conclusionsThe newly devised eCPS was well received and considered easy to use by MS patients. Reliability was in line with that of the original version. Role preference appears affected by cultural characteristics and (borderline statistical significance) education.

Indexed as

ComputersInternal-External ControlRoleGermanyHumansItalyMultiple SclerosisReproducibility of ResultsSurveys and Questionnaires

Identifiers

PMID23823627
PMCPMC3688863

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.