ArticleAnnals of human biology
Attitudes and beliefs toward biobehavioural research participation: voices and concerns of urban adolescent females receiving outpatient mental health treatment.
Article in Annals of human biology. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
15 citing papers in PubMed, 2 syntheses or guidelines pooled it, 21 citations in OpenAlex.
- Understanding Ethical Issues of Research Participation From the Perspective of Participating Children and Adolescents: A Systematic Review.Worldviews on evidence-based nursing · 2017Pooled it
- Antiretroviral Therapy Adherence Enhancing Interventions for Adolescents and Young Adults 13-24 Years of Age: A Review of the Evidence Base.Journal of acquired immune deficiency syndromes (1999) · 2016Pooled it
- Better Design, Better Engagement, Better Data: Adolescents' Insights for Improving Health Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- School personnel's comprehension and perceptions of school recruitment materials for Strong Teens for Healthy Schools.Frontiers in public health · 2026Article
- Are Adolescents Sensitive About Sensitive Data? Exploring Student Concerns About Privacy, Confidentiality, and Data Use in Health Research.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2025Article
- Informed consent, genomic research and mental health: A integrative review.Nursing ethics · 2022Review
- Best practices for recruitment of adolescents for biobanking and precision health research: a retrospective analysis comparing juvenile idiopathic arthritis cases with healthy controls.Pediatric rheumatology online journal · 2021Article
- Understanding Neighborhoods' Impact on Youth Substance Use and Mental Health Outcomes in Paterson, New Jersey: Protocol for a Community-Based Participatory Research Study.JMIR research protocols · 2021Article
- Improving recruitment and retention of adolescents and young adults with cancer in randomized controlled clinical trials.International journal of adolescent medicine and health · 2019Article
- Article
- Sexual health research among youth representing minority populations: To waive or not to waive parental consent.Ethics & behavior · 2018Article
- Principal components analysis to identify influences on research communication and engagement during an environmental disaster.BMJ open · 2016Article
- A Web 2.0 and Epidemiology Mash-Up: Using Respondent-Driven Sampling in Combination with Social Network Site Recruitment to Reach Young Transwomen.AIDS and behavior · 2016Article
- Buddy Study: Partners for better health in adolescents with type 2 diabetes.World journal of diabetes · 2015Article
- A Qualitative Examination of Respondent-Driven Sampling (RDS) Peer Referral Challenges Among Young Transwomen in the San Francisco Bay Area.JMIR public health and surveillanceArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundBiobehavioural research methodology can be invasive and burdensome for participants - particularly adolescents with mental illnesses. Human biological researchers should consider how methodological impositions may hinder adolescent research participation. However, literature on adolescent's voices and concerns toward biobehavioural research participation is virtually non-existent.
aimThis study was designed to determine adolescents' perceptions of participation in research involving the collection of biomarkers via blood, saliva and/or urine samples. SUBJECTS AND
methodsUrban adolescent females (aged 12-19) receiving outpatient mental health treatment (n = 37) participated in focus groups with concurrent survey administration to explore attitudes, beliefs and willingness/intentions toward biobehavioural research participation.
resultsParticipants had favourable attitudes toward biobehavioural research and were amenable to provide each specimen type. Mistrust for research emerged, however, and concerns related to privacy and confidentiality were expressed.
conclusionParticipant recruitment is a critical component in study design and implementation; this includes knowledge of population-specific recruitment barriers and facilitators. This innovative paper provides a context for the research participants' decision-making process, strategies to allay fears and concerns and concrete areas to target in research-related interventions. Although the findings are from a specific, US-based sample, the implications warrant replication of the research in other geosocial settings.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.