ArticleJournal of medical Internet research2013
Using online health communities to deliver patient-centered care to people with chronic conditions.
Article in Journal of medical Internet research, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 79 papers, 3 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
79 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Uncovering the hierarchical determinants of continuous usage in online health communities: integrating meta-analysis with FUZZY-DEMATEL-AISM.Scientific reports · 2026Pooled it
- Behavioural interventions delivered through interactive social media for health behaviour change, health outcomes, and health equity in the adult population.The Cochrane database of systematic reviews · 2021Pooled it
- Improving the Theoretical Understanding Toward Patient-Driven Health Care Innovation Through Online Value Cocreation: Systematic Review.Journal of medical Internet research · 2020Pooled it
- The Association Between Increased Levels of Patient Engagement With an Internet Support Group and Improved Mental Health Outcomes at 6-Month Follow-Up: Post-Hoc Analyses From a Randomized Controlled Trial.Journal of medical Internet research · 2018Trial
- A Web-Based and Mobile Health Social Support Intervention to Promote Adherence to Inhaled Asthma Medications: Randomized Controlled Trial.Journal of medical Internet research · 2016Trial
- Impact of Scientific Versus Emotional Wording of Patient Questions on Doctor-Patient Communication in an Internet Forum: A Randomized Controlled Experiment with Medical Students.Journal of medical Internet research · 2015Trial
- Privacy Concerns and Configurational Patterns of Health Information Sharing Intention Among Patients with Chronic Diseases in Online Health Communities: An SEM and fsQCA Analysis.Healthcare (Basel, Switzerland) · 2026Article
- Stage-Based Model of User Engagement Patterns in an Online Health Community for Cardiovascular Disease Management: Qualitative Interview Study.Journal of medical Internet research · 2026Article
- Large Language Model-Assisted Annotation Framework for Cross-Platform Analysis of Online Autism Communities: Implications for Parent Education and Digital Support.Journal of medical Internet research · 2026Article
- From Isolation to Information: Launching an Online Community for Patients with Primary Sclerosing Cholangitis, Primary Biliary Cholangitis, and Autoimmune Hepatitis in Romania-A Descriptive Study.Healthcare (Basel, Switzerland) · 2025Article
- Analysis of the Behavioral Performance and Social Support of Patients in Online Health Communities From User Profile Perspectives: Comparative Study.Journal of medical Internet research · 2025Article
- Endometriosis Communities on Reddit: Quantitative Analysis.Journal of medical Internet research · 2025Article
- Digital Interventions for Patients With Juvenile Idiopathic Arthritis: Systematic Review and Meta-Analysis.JMIR pediatrics and parenting · 2025Review
- Health Communication on the Internet: Promoting Public Health and Exploring Disparities in the Generative AI Era.Journal of medical Internet research · 2025Article
- Value-based healthcare for social insurance medicine: key enablers for adoption in practice.BMJ open quality · 2024Article
- Innovative Applications of Telemedicine and Other Digital Health Solutions in Pain Management: A Literature Review.Pain and therapy · 2024Review
- A QUANTITATIVE LINGUISTIC ANALYSIS OF A CANCER ONLINE HEALTH COMMUNITY WITH A SMOOTH LATENT SPACE MODEL.The annals of applied statistics · 2024Article
- Article
- Willingness to reduce alcohol consumption predicted by short-form video exposure, media involvement, psychological bias, and cognitive factor.Frontiers in psychology · 2024Article
- Design of the STEPS trial: a phase II randomized controlled trial evaluating eHealth-supported motor-cognitive home training for Parkinson's disease.BMC neurology · 2023Article
19 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundOur health care system faces major threats as the number of people with multiple chronic conditions rises dramatically.
objectiveTo study the use of Online Health Communities (OHCs) as a tool to facilitate high-quality and affordable health care for future generations.
methodsOHCs are Internet-based platforms that unite either a group of patients, a group of professionals, or a mixture of both. Members interact using modern communication technologies such as blogs, chats, forums, and wikis. We illustrate the use of OHCs for ParkinsonNet, a professional network for Parkinson disease whose participants-both patients and professionals-use various types of OHCs to deliver patient-centered care.
resultsWe discuss several potential applications in clinical practice. First, due to rapid advances in medical knowledge, many health professionals lack sufficient expertise to address the complex health care needs of chronic patients. OHCs can be used to share experiences, exchange knowledge, and increase disease-specific expertise. Second, current health care delivery is fragmented, as many patients acquire relationships with multiple professionals and institutions. OHCs can bridge geographical distances and enable interdisciplinary collaboration across institutions and traditional echelons. Third, chronic patients lack adequate tools to self-manage their disease. OHCs can be used to actively engage and empower patients in their health care process and to tailor care to their individual needs. Personal health communities of individual patients offer unique opportunities to store all medical information in one central place, while allowing transparent communication across all members of each patient's health care team.
conclusionsOHCs are a powerful tool to address some of the challenges chronic care faces today. OHCs help to facilitate communication among professionals and patients and support coordination of care across traditional echelons, which does not happen spontaneously in busy practice.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.