ArticleHealth expectations : an international journal of public participation in health care and health policy2015
Families and health-care professionals' perspectives and expectations of family-centred care: hidden expectations and unclear roles.
Article in Health expectations : an international journal of public participation in health care and health policy, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 49 papers, 3 of them syntheses that pooled it.
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Who cites it
49 citing papers in PubMed, 3 syntheses or guidelines pooled it, 199 citations in OpenAlex.
- The Views and Experiences of Families and Registered Nurses Regarding Hospital Care and Support of Children With Intellectual Disabilities: A Systematic Review.Journal of applied research in intellectual disabilities : JARID · 2026Pooled it
- Pooled it
- Effectiveness of paediatric occupational therapy for children with disabilities: A systematic review.Australian occupational therapy journal · 2019Pooled it
- Trial
- Child participation and care experience in child health clinic nursing encounters: children's views by multi-methodology.International journal of qualitative studies on health and well-being · 2026Article
- Paediatric Procedural Sedation and Analgesia in Emergency Departments: A Delphi Consensus Study.Emergency medicine Australasia : EMA · 2026Article
- Perceptions of Nurses, Patients, and Family Members on Rooming-In in Adult Care: A Cross Sectional Survey Study.Journal of advanced nursing · 2026Article
- Family first: integrating principles of family-centered care to improve the tuberculosis care cascade.BMC global and public health · 2026Review
- Service providers' adaptations to facilitate family-centered care for children with cerebral palsy: a qualitative study.BMC primary care · 2026Article
- Facilitating Family-Centred Care at the Paediatric Intensive Care Unit: Implementation of a Co-Created Bedside Family Board.Nursing in critical care · 2026Article
- Challenges and Solutions to Building Family-Staff Relationships in the NICU: A Qualitative Study.Hospital pediatrics · 2025Article
- A Family-Centred Paediatric Delirium Bundle: A Feasibility Study.Nursing in critical care · 2025Article
- Experiences and perspectives of parents on their care roles in two Rwandan public neonatal units: a qualitative study.The Pan African medical journal · 2025Article
- Parental Self-Efficacy and Personal Time Help Explain Impact of Parent-Staff Interactions on Parental Distress and Bonding in the Neonatal Intensive Care Unit.The Journal of pediatrics · 2025Article
- Home-like care: Collaboration between parents and nurses in everyday situations when children are hospitalized.Journal of child health care : for professionals working with children in the hospital and community · 2024Article
- Clinician Perceptions of Family-Centered Care in Pediatric and Congenital Heart Settings.JAMA network open · 2024Article
- Student nurse perceptions of family nursing practices in South Africa: A descriptive survey.Health SA = SA Gesondheid · 2024Article
- Article
- Parental factors affecting their participation in decision-making for neonates with life-threatening conditions: A qualitative study Parents' participation in decision-making.Journal of education and health promotion · 2024Article
- Bringing therapy home: Exploring parents' experiences of telehealth for children with developmental coordination disorder.The British journal of occupational therapy · 2023Article
Corrections and comments
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Authors and funding
1 author at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
BACKGROUND AND
objectiveFamily-centred care (FCC) is viewed as a pivotal concept in the provision of high-quality nursing care for children and their families, yet implementation continues to be problematic worldwide. This research investigated how FCC was enacted from families and nurses' perspectives.
designDescriptive qualitative approach using elements of analysis from grounded theory method. Data were collected though individual interviews with 18 children aged 7-16 years, their parents (n = 18) and 18 nurses from two children's hospital and one children's unit in a large general hospital in Ireland.
resultsFour key themes were identified: expectations; relying on parents' help; working out roles; and barriers to FCC. Nurses wholeheartedly endorsed FCC because of the benefits for families and their reliance on parents' contribution to the workload. There was minimal evidence of collaboration or negotiation of roles which resulted in parents feeling stressed or abandoned. Nurses cited busy workload, under-staffing and inappropriate documentation as key factors which resulted in over-reliance on parents and hindered their efforts to negotiate and work alongside parents.
conclusionsFamilies are willing to help in their child's care but they require clear guidance, information and support from nurses. Hidden expectations and unclear roles are stressful for families. Nurses need skills training, adequate resources and managerial support to meet families' needs appropriately, to establish true collaboration and to deliver optimal family-centred care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.