ArticleHealth and quality of life outcomes2013
Development of a new tool for assessing health-related quality of life in patients with primary hyperparathyroidism.
Article in Health and quality of life outcomes, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 3 of them syntheses that pooled it.
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Who cites it
11 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Patient-reported outcome measures for primary hyperparathyroidism: a systematic review of measurement properties.Health and quality of life outcomes · 2024Pooled it
- Effects of surgery on the patient-reported outcomes of primary hyperparathyroidism patients with mild hypercalcemia without classic symptoms: a systematic review of the literature.Surgery today · 2020Pooled it
- Comparative efficacy of parathyroidectomy and active surveillance in patients with mild primary hyperparathyroidism: a systematic review and meta-analysis.Osteoporosis international : a journal established as result of cooperation between the European Foundation for Osteoporosis and the National Osteoporosis Foundation of the USA · 2016Pooled it
- Patient-Reported Outcome Measures Used in Primary Hyperparathyroidism: A Scoping Review.Annals of surgical oncology · 2026Article
- Validation and implementation of the Dutch PHPQoL for primary hyperparathyroidism.Endocrine connections · 2025Article
- Quality of life in patients with primary hyperparathyroidism before and after parathyroidectomy: long term single center experience.BMC endocrine disorders · 2023Article
- Changes in quality of life 6 months after parathyroidectomy for primary hyperparathyroidism.Endocrine connections · 2022Article
- Instrument to evaluate the knowledge of patient with cirrhosis on his disease: construction and validity.BMC gastroenterology · 2021Article
- [Validation and testing of the Russian version of PHPQoL questionnaire for quality of life assessment in patients with primary hyperparathyroidism (PHPT)].Problemy endokrinologii · 2021Article
- Primary hyperparathyroidism.Nature reviews. Disease primers · 2016Review
- Development and preliminary validation of Chinese preschoolers' eating behavior questionnaire.PloS one · 2014Article
Corrections and comments
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Authors and funding
6 authors.
Funding
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Abstract
backgroundSeveral studies in recent years have evaluated Health Related Quality of Life (HRQoL) of patients with primary hyperparathyroidism (PHPT). No disease specific questionnaires are available to assess the impact of the disease. The aim of this research is to describe the development of a new disease specific Quality of Life (QoL) questionnaire for use specifically with PHPT patients.
methodsA conceptual model was developed describing the impact of the disease and its symptoms on QoL domains. A literature review was conducted to identify the most relevant domains. A focus group with experts was used to validate the domains; 24 patients were also interviewed to complement the information from the patient's perspective. A content analysis of the interviews was performed to identify items related with the impact of the disease, leading to PHPQoL-V.1 which was presented to a sample of 67 patients. Reliability was assessed by Cronbach's coefficient alpha and item-total score correlations. Validity was assessed by a factor analysis performed to determine the number of domains. Rasch analysis was carried out in order to refine the questionnaire items.
results259 items were extracted from the interviews that were subsequently reduced to 34 items. Cronbach's coefficient alpha was 0.92. The factor analysis extracted two domains (physical and emotional). After Rasch analysis the questionnaire PHPQoL-V.2 kept 16 items (9 physical and 7 emotional). The questionnaire was developed in a Spanish population and the final version was translated to English through translation and back-translation.
conclusionThe first disease specific HRQoL questionnaire for PHPT patients (PHPQoL-16) has been developed. Validation studies designed to assess measurement properties of this tool are currently underway.
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