ArticleHealth and quality of life outcomes2013
'Peace' and 'life worthwhile' as measures of spiritual well-being in African palliative care: a mixed-methods study.
Article in Health and quality of life outcomes, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
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Who cites it
21 citing papers in PubMed.
- A validation study of the modified Chinese version of the integrated palliative care outcome scale (IPOS) among patients with advanced illness in Hong Kong.BMC palliative care · 2025Article
- Serious Adverse Drug Reactions to Long-Term Oral Liquid Morphine in Patients with Chronic Pain: A Cross-Sectional Survey in Palliative Care.Journal of pain research · 2025Article
- A bibliometric review of positive psychology and well-being research in Africa.Frontiers in psychology · 2024Review
- Co-design and prototype development of the 'Ayzot App': A mobile phone based remote monitoring system for palliative care.Palliative medicine · 2023Article
- The Meaning of Healing to Adult Patients with Advanced Cancer.International journal of environmental research and public health · 2023Article
- Spirituality as a protective factor for chronic and acute anxiety in Brazilian healthcare workers during the COVID-19 outbreak.PloS one · 2022Article
- A meaning-centered spiritual care training program for hospice palliative care teams in South Korea: development and preliminary evaluation.BMC palliative care · 2021Article
- The development and cognitive testing of the positive outcomes HIV PROM: a brief novel patient-reported outcome measure for adults living with HIV.Health and quality of life outcomes · 2020Article
- Spiritual Care, Pain Reduction, and Preferred Place of Death Among Advanced Cancer Patients in Soweto, South Africa.Journal of pain and symptom management · 2020Article
- The influence of spirituality on decision-making in palliative care outpatients: a cross-sectional study.BMC palliative care · 2020Article
- Psychometric properties of the Chinese mainland version of the Palliative Care Spiritual Care Competency Scale (PCSCCS-M) in nursing: a cross-sectional study.BMC palliative care · 2019Article
- Perceptions of palliative care in a lower middle-income Muslim country: A qualitative study of health care professionals, bereaved families and communities.Palliative medicine · 2019Article
- The cultural expression of spiritual distress in Israel.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2018Article
- A quantitative method for measuring the relationship between an objective endpoint and patient reported outcome measures.PloS one · 2018Article
- Spiritual Experiences of Muslim Critical Care Nurses.Journal of religion and health · 2017Article
- Discovering the hidden benefits of cognitive interviewing in two languages: The first phase of a validation study of the Integrated Palliative care Outcome Scale.Palliative medicine · 2016Article
- Validity, reliability and responsiveness to change of the Italian palliative care outcome scale: a multicenter study of advanced cancer patients.BMC palliative care · 2016Article
- Exploring meanings of illness causation among those severely affected by multiple sclerosis: a comparative qualitative study of Black Caribbean and White British people.BMC palliative care · 2015Article
- Article
- Building resiliency: a cross-sectional study examining relationships among health-related quality of life, well-being, and disaster preparedness.Health and quality of life outcomes · 2014Article
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Authors and funding
14 authors.
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Abstract
backgroundPatients with incurable, progressive disease receiving palliative care in sub-Saharan Africa experience high levels of spiritual distress with a detrimental impact on their quality of life. Locally validated measurement tools are needed to identify patients' spiritual needs and evaluate and improve spiritual care, but up to now such tools have been lacking in Africa. The African Palliative Care Association (APCA) African Palliative Outcome Scale (POS) contains two items relating to peace and life worthwhile. We aimed to determine the content and construct validity of these items as measures of spiritual wellbeing in African palliative care populations.
methodsThe study was conducted at five palliative care services, four in South Africa and one in Uganda. The mixed-methods study design involved: (1) cognitive interviews with 72 patients, analysed thematically to explore the items' content validity, and (2) quantitative data collection (n = 285 patients) using the POS and the Spirit 8 to assess construct validity.
results(1) Peace was interpreted according to the themes 'perception of self and world', 'relationship to others', 'spiritual beliefs' and 'health and healthcare'. Life worthwhile was interpreted in relation to 'perception of self and world', 'relationship to others' and 'identity'. (2) Conceptual convergence and divergence were also evident in the quantitative data: there was moderate correlation between peace and Spirit 8 spiritual well-being (r = 0.46), but little correlation between life worthwhile and Spirit 8 spiritual well-being (r = 0.18) (both p < 0.001). Correlations with Spirit 8 items were weak to moderate.
conclusionsFindings demonstrate the utility of POS items peace and life worthwhile as distinct but related measures of spiritual well-being in African palliative care. Peace and life worthwhile are brief and simple enough to be integrated into routine practice and can be used to measure this important but neglected outcome in this population.
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