ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2013
Cancer stage knowledge and desire for information: mismatch in Latino cancer patients?
Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 2 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
32 citing papers in PubMed, 2 syntheses or guidelines pooled it, 59 citations in OpenAlex.
- Adaptation of a Multimedia Chemotherapy Educational Intervention for Latinos: Letting Patient Narratives Speak for Themselves.Journal of cancer education : the official journal of the American Association for Cancer Education · 2023Pooled it
- Health literacy in cancer caregivers: a systematic review.Journal of cancer survivorship : research and practice · 2021Pooled it
- Empowering Latina breast cancer patients to make informed decisions about clinical trials: a pilot study.Translational behavioral medicine · 2018Trial
- Do We Have a Knowledge Gap with Our Patients?-On the Problems of Knowledge Transfer and the Implications at the End of Life.International journal of environmental research and public health · 2025Article
- Population interest in and adequacy of the information on the safety of antineoplastic agents in the Spanish edition of Wikipedia.PloS one · 2025Article
- A Clinical Focus on Shared Decision Making in Clinical Practice When Providing Dysarthria and Dysphagia Services to Individuals With Amyotrophic Lateral Sclerosis.Perspectives of the ASHA special interest groups · 2024Article
- Engaging the community served: a U.S. Cancer Center's Facebook live cancer awareness campaign for Spanish-speaking Latinos during COVID-19.Cancer causes & control : CCC · 2023Article
- How patients with advanced cancer conceptualize prognosis: A phenomenological qualitative inquiry.Palliative medicine · 2023Article
- Factors associated with knowledge of diagnosis, prognosis & distress in cancer patients receiving palliative care - A retrospective cohort analysis.The Indian journal of medical research · 2023Article
- Considerations for Pain Assessments in Cancer Patients: A Narrative Review of the Latin American Perspective.Cureus · 2023Review
- Characteristics of Cancer Hospitals with Written Language Access Policies.Journal of immigrant and minority health · 2023Article
- Equitable Representation of Latinos in Clinical Research Is Needed to Achieve Health Equity in Cancer Care.JCO oncology practice · 2022Article
- Spanish Medical Interpreters' Management of Challenges in End of Life Discussions.Patient education and counseling · 2021Article
- Challenges for Latina Breast Cancer Patient Survivorship Care in a Rural US-Mexico Border Region.International journal of environmental research and public health · 2021Article
- Spiritual Well-Being, Depression, and Quality of Life Among Latina Breast Cancer Survivors.Journal of religion and health · 2021Article
- Media Exposure, Cancer Beliefs, and Cancer-Related Information-Seeking or Avoidance Behavior Patterns in China.International journal of environmental research and public health · 2021Article
- "Maintaining hope:" challenges in counseling latino patients with advanced cancer.Journal of psychosocial oncology research and practice · 2020Article
- The Perspective of a Breast Cancer Patient: A Survey Study Assessing Needs and Expectations.Cureus · 2020Article
- Hispanic Orientation and Cancer-Related Knowledge in Childhood Cancer Survivors.Journal of adolescent and young adult oncology · 2019Article
- Oregon's Familias en Acción replicates benefits for underserved cancer co-survivors through Un Abrazo Para la Familia.Psycho-oncology · 2018Article
Corrections and comments
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Authors and funding
6 authors at 1 institution in 1 country.
Funding
Abstract
Having more health knowledge has a crucial and positive impact on cancer outcomes. Patients' cancer knowledge influences their ability to participate actively in decision-making processes for medical care and in treatment choices. The purpose of this study was to determine the demographic and medical correlates of lack of cancer stage knowledge and desire for information among Latino cancer patients. The sample included 271 underserved Latino cancer patients recruited from four cancer clinics in New York City. Participants completed a needs assessment survey in their preferred language, which included sociodemographic and health-related questions. Close to two-thirds of the sample (65%) had no knowledge of their stage, and 38% were unaware of the metastatic state of their tumor. Only 15% of the patients expressed that they would like additional information about their diagnosis and/or treatment. After controlling for sociodemographic characteristics, being an immigrant with limited English proficiency and monolingual in Spanish were predictors of stage unawareness and less desire/need for cancer information. Patients needing interpretation for health care were less likely to know whether their tumor had metastasized and their cancer stage and to desire information about their cancer diagnosis and/or treatment. This study shows considerably low levels of stage awareness among Latinos diagnosed with cancer. This lack of knowledge might adversely impact their treatment decisions and disease management. Future studies should focus on identifying barriers to acquisition of disease information and other disease-specific informational deficits.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.